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Textbook Ethnogeriatrics Healthcare Needs of Diverse Populations 1St Edition Lenise Cummings Vaughn Ebook All Chapter PDF
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Lenise Cummings-Vaughn
Dulce M. Cruz-Oliver
Editors
Ethnogeriatrics
Healthcare Needs of
Diverse Populations
123
Ethnogeriatrics
Lenise Cummings-Vaughn • Dulce M. Cruz-Oliver
Editors
Ethnogeriatrics
Healthcare Needs of Diverse Populations
Editors
Lenise Cummings-Vaughn Dulce M. Cruz-Oliver
Division of Geriatrics and Nutritional Division of Geriatrics Medicine
Science Department of Internal Medicine
Washington University in Saint Louis Saint Louis University
School of Medicine St. Louis, MO, USA
St. Louis, MO, USA
Thanks to the authors for their enthusiasm and contributions that made the vision of
this volume become a reality. It is a privilege to have all of you as colleagues and
share a passion for geriatrics. I also want to thank Nicole McAmis who tirelessly
worked on background research.
vii
Contents
ix
x Contents
xi
xii Contributors
Table 1.1 U.S. Federal Office of Management and Budget race and ethnicity categories
Race or ethnicity Definition
American Indian or A person having origins in any of the original peoples of North and
Alaska Native South America (including Central America) who maintains cultural
identification through tribal affiliation or community attachment
Asian A person having origins in any of the original peoples of the Far East,
Southeast Asia, or the Indian Subcontinent, including, for example,
Cambodia, China, India, Japan, Korea, Malaysia, Pakistan, the
Philippine Islands, Thailand, and Vietnam
Black or African A person having origins in any of the black racial groups of Africa
American
Native Hawaiian or A person having origins in any of the original peoples of Hawaii,
Other Pacific Islander Guam, Samoa, or other Pacific Islands
White A person having origins in any of the original peoples of Europe, the
Middle East, or North Africa
Hispanic or Latino A person of Cuban, Mexican, Puerto Rican, South or Central
American, or other Spanish culture or origin, regardless of race
Note: Data from U.S. Office of Management and Budget. Revision to the Standards for
Classification of Federal Data on Race and Ethnicity 1997
values, institutions of racial, ethnic, religious, or social groups” [8]. Culture also
informs lifestyle and health behaviors and thus plays an important role in ethnora-
cial differences in disease and chronic health conditions. Relatedly, cultural com-
petence refers to the knowledge and interpersonal skills that allow health providers
to understand, appreciate, and work with individuals from cultures other than their
own [9]. Improving cultural competence among health care providers may be a
critical step toward addressing health disparities [10]. Cultural humility describes
the process of self-reflection and self-critique in one’s limitations in intercultural
understanding and recognition of the power imbalance between patients and provid-
ers. Cultural humility helps to facilitate mutual respect and communication between
patients and providers [11].
The U.S. Department of Health and Human Services and the Center for Disease
Control defines health disparity as “a particular type of health difference that is
closely linked with social, economic, and/or environmental disadvantage” [12].
Dressler and colleagues [13] add to the definition by noting health disparities also
refer to differences in morbidity, mortality, and health care access by race and ethnic-
ity. Related terms include health inequality and health inequity. Health inequality
refers to systemic differences in the health of groups and communities occupying
unequal positions in society [14], whereas health inequity describes inequalities in
health that are the consequence of bias or injustice [15]. Despite differences among
these terms, they are often used interchangeably [16]. Social determinants of health
refer to the effect of social and economic factors that both directly and indirectly
affect health. Several conceptual models of social determinants of health have been
proposed [17–19]. While these models differ in complexity, most express health as
the byproduct of downstream and proximal factors such as health-related attitudes
1 Why Ethnogeriatrics Is Important 5
and behaviors, which are influenced by upstream and more distal factors such as
socioeconomic opportunities and resources (e.g., housing, income, and food supply)
[20]. Table 1.2 presents definitions of key terms related to ethnogeriatrics.
Racial and ethnic health disparities exist across the lifespan and compound with age
[21, 22]. Generally, racial−ethnic minorities experience shorter life expectancies,
and higher rates of morbidity and disability than non-Hispanic Whites [23]. For
example, the average life expectancy at birth for African Americans is approxi-
mately 4 years shorter than that of non-Hispanic Whites [24]; however, Asian elders
have the longest life expectancy compared to all other groups [25]. Table 1.3 pro-
vides details on life expectancy by race/ethnic group. With regard to morbidity,
Hispanics/Latino, Mexican Americans in particular, have a higher prevalence of
cardiometabolic risk factors (abdominal obesity, high cholesterol, and high fasting
glucose levels) than non-Hispanic Whites and African Americans [26]. Heterogeneity
in health also exists within ethnoracial groups. For example, studies of risk factors
for diabetes vary considerably among Hispanic/Latino subgroups [27], and among
6 J.S. Skinner et al.
In this section, we provide a brief overview of the historical context of race in the
U.S. Next, we outline major psychosocial and individual level determinants of
health. We then discuss how culture intersects with health beliefs and behaviors.
Lastly, we review the role of social networks and environmental factors in health
disparities.
is common practice to assume race and ethnic classifications are static constructs
and infer group homogeneity. Studies of race, ethnicity, and gene variation demon-
strate greater genetic heterogeneity within than between racial/ethnic groups [6].
This does not negate the importance of race and ethnicity classifications, but these
classifications likely serve as surrogate indicators for more meaningful constructs
that explain disparities in health. These constructs include cultural experience and
beliefs, educational attainment, experiences with discrimination, and socioeco-
nomic positioning [31].
Race, particularly in the U.S., is associated with different life experiences that
affect health. For example, African American history is marked with gross social
injustices such as slavery, discrimination, and segregation [32]. Similarly, Native
Americans/Alaska Natives have experienced historical traumas including exploita-
tion, loss of land, and enculturation [33]. As a result, these groups often cite mistrust
of the health care system as a barrier to both health care and participation in clinical
research [34, 35]. Many ethnoracial groups continue to experience disadvantage and
a higher burden of psychosocial stress throughout life. These experiences may pro-
mote maladaptive coping strategies and increase vulnerability to disease and ulti-
mately exacerbate health disparities in late-life [33, 36].
1.3.3 Culture
It is widely accepted that cultural values and traditions influence health beliefs and
behaviors. Older minorities may differ in health behaviors related to self-care and
views on illness management. African American elders, a group with a high rate of
chronic disease, engage in a range of health behaviors that vary by illness type [54].
For example, a study examining racial differences in self-care behaviors for hyper-
tension showed African American women were more likely to consume recom-
mended amounts of fruits and vegetables but less likely to engage in physical activity
to manage hypertension than White women [55]. Furthermore, African American
elders are more likely to incorporate nontraditional self-care strategies such as home
remedies for chronic illness management than White elders. Similar findings have
been reported for Asian and Hispanic/Latino elders [56, 57]. Asian elders, Chinese
and Japanese elders in particular, have the longest life expectancy relative to all
other groups in the U.S. [25]. Longevity in this group has been attributed at least in
part to cultural value placed on health-promoting lifestyle behaviors [58]. A cultural
tradition that emphasizes self-discipline also may contribute to the adoption and
maintenance of health-promoting behaviors [54]. Hispanic/Latino elders with dia-
betes are less likely to self-monitor glucose levels than White elders [59].
Acculturation is the process by which one group adopts the cultural attitudes,
values, and behaviors of another [60]. Prior work on acculturation has mostly
focused on Hispanic/Latino populations of Mexican origin [61, 62]. In many stud-
ies, acculturation is determined by measures such as language proficiency and other
contextual factors such as immigration status, length of stay in the United States,
and number of generations residing within the United States [63]. Lower levels of
English proficiency have been associated with decreased utilization of preventative
health care access [64] and thus may increase one’s risk for disease and disability.
Language barriers may also impede communication in patient−provider interac-
tions and health-information seeking behavior. It is important to note English profi-
ciency is not a universal measure of acculturation and measures used vary by
immigrant status and racial/ethnic group [65].
Health and aging occur in a social context of family relationships and social ties.
Social connections can influence self-care behaviors and these dynamics may differ
by ethnoracial groups. A better understanding of how interpersonal relationships
impede and promote health in older minority adults may help inform the develop-
ment of effective and culturally appropriate strategies to leverage the potential ben-
efits of interpersonal relationships in maintaining and improving health in late-life.
African American elders are more likely to live with a child or grandchild than
White elders [66]. African Americans are also more likely to care for grandchil-
dren, and less likely to be institutionalized than Whites [67]. Gender differences in
1 Why Ethnogeriatrics Is Important 9
1.3.5 Environment
Other researchers propose the use of occupational status as an index of SES may be
suboptimal in aged populations that are no longer working [82]. To address this, a
few studies have measured indicators of SES using cumulative wealth, such as
house values. These studies show wealth may be a more robust index of SES and
may better predict health outcomes than traditional SES indices in older adult popu-
lations [83, 84]. These studies have focused exclusively on Caucasian samples;
therefore, it has yet to be determined how wealth indicators relate to health in
diverse older adult populations.
Racial and ethnic minorities and individuals of lower socioeconomic status are
more likely to live in low SES neighborhoods than Whites [85]. Neighborhood
characteristics can affect health and well-being especially for older adults. Feelings
of safety, mobility, and health status have all been shown to be impacted by local
neighborhood characteristics. Perceived neighborhood safety was found to be a pre-
dictor of functional decline in a diverse sample of community-dwelling older adults
[86]. Older adults who perceive poor neighborhood safety are more likely to be
physically inactive [87], which is a predictor of disability and mortality [88].
Neighborhood conditions, such as excessive noise, trash, crime and other environ-
mental hazards, have been comprehensively described as neighborhood disorder
[89] and such communities often include resource inequities such as inadequate
access to quality food sources, recreation, and health care [90]. Neighborhood dis-
order is disproportionately experienced by marginalized communities including
seniors and ethnoracial minorities [89]. Older adults who reside in disordered
neighborhoods report poorer self-rated health [91] and worse neighborhood charac-
teristics have been associated with increased adiposity, hyperglycemia, and low
high-density lipoprotein levels [92]. Poor neighborhood conditions have also been
associated with an increased prevalence of metabolic syndrome among White and
Black elders [93]. Studies show higher perceived social cohesion, the degree of con-
nectedness between members of a community [94], is associated with improved
cardiovascular health outcomes in older adults. Researchers propose that
neighborhood social cohesion may function as an extended support system to
community-dwelling elders.
Currently, there are too few health professionals with expertise in geriatric care.
Because fewer U.S. medical residents are entering geriatric medicine, and overall
wages for geriatricians are significantly lower than that of other medical specialties
[95], this trend is likely to continue. Lack of diversity in the clinical care and leader-
ship workforce are associated with health care access and quality of care, especially
for minorities [96]. Recent statistics indicate that although African Americans,
Hispanics/Latinos, and Native Americans collectively make up approximately 25 %
of the U.S. population, they represent 13.5 % of U.S. physicians [97] and fewer than
2 % of individuals in senior health care management [98]. Minority physicians are
more likely to provide care to minority and underserved patient populations [99], and
racially concordant patient−provider interactions are associated with higher rates of
patient satisfaction and trust [100, 101].
Implicit and unconscious cognitive processes may influence a physicians’ per-
ception of the patients [102, 103] and social categorization based on physical attri-
butes such as race/ethnicity-related stereotypes among physicians [104, 105].
Providing ongoing training in cultural competence is essential to preparing provid-
ers to care for diverse groups of older adults.
Structural factors related to the health care system also impact minority elders’ ability to
receive health care, navigate the health care system, and effectively communicate with
health care providers. Factors such as complex bureaucratic processes to determine
insurance eligibility, long waiting times to receive health care [106], and limited avail-
ability of culturally and linguistically appropriate services and resources (e.g., interpreter
services for elders with limited English proficiency and appropriate health education
materials) [107], all compromise the quality of health care minority elders receive.
The racial and ethnic classifications used in many health care settings present a
significant barrier to understanding the needs and preferences of diverse older
adults. The five racial categories and one ethnic category currently used in many
health care and research settings are not comprehensive and may not be linked to
culture, health-related attitudes and beliefs, and behaviors [29, 31]. More precise
and detailed classifications will advance our understanding of ethnogeriatrics and
help health providers better develop more patient-centered approaches, which will
ultimately improve geriatric care.
Much of the existing literature on disparities among older adults focuses on differ-
ences between African American and White elders [108, 109]. This is largely due
to historically small sample sizes of other racial/ethnic groups in clinical research
12 J.S. Skinner et al.
and the broader US population. To provide health care to the changing demograph-
ics of the population, additional research related to health and aging in other racial/
ethnic groups is needed. For example, limited data shows Native Americans/
Alaska Natives have a shorter life expectancy than other groups and a high burden
of cardiovascular disease [110, 111]. Many Native Americans/Alaska Natives
reside in rural locations making access to health care challenging. Health care
delivered by the Indian Health Service, a federally funded program, is the primary
conduit of health care to many of members of these communities [112]. However,
these care centers are limited in number, inadequately funded, and limited in geri-
atric services. A second group for which there is even less health data is older
adults who are recent immigrants. There are many challenges associated with iden-
tifying and studying this segment of the population; therefore, it is unknown how
many immigrant individuals are older adults. Available data shows immigrant
experience unique barriers related to health care including limited knowledge
about the U.S. health care system and services and lack of adequate health insur-
ance [112]. As such, elders who are immigrants may be a particularly vulnerable
segment of the population.
• The demographic profile of the U.S. older adult population is rapidly becoming
more racially and ethnically diverse. These groups demonstrate both within and
between group heterogeneity in their life experiences and cultural beliefs about
health and aging.
• Racial/ethnic group classifications do not in isolation explain disparities in
health. Examination of the independent and collective contributions of cultural,
environmental, and socioeconomic factors across the life course is necessary to
better understand to minority elder health and inform health care delivery for this
segment of the population.
• Challenges to providing quality ethnogeriatric care exist at the clinical, organiza-
tional, and structural levels of the current health care system. In order to address
these challenges, educators, researchers, heath care providers, and health policy
makers must
– Implement strategies to provide training and education to more health care
providers and increase the diversity of the work force
– Provide cultural competence training that addresses clinical, organizational,
and structural barriers to care for minority elders
– Increase access to health providers and systems that provide interpreter ser-
vices and accommodations for older adults with diverse health care needs and
preferences
– Routinely collect self-reported data on racial and ethnic group identification
and language preferences
1 Why Ethnogeriatrics Is Important 13
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Chapter 2
Historical and Conceptual Foundations
of Ethnogeriatrics
Gwen Yeo
Aging
Geriatrics Ethnogerontology
ETHNO-
GERIATRICS
Health Ethnicity
Transcultural
Health
To explore the degree to which health care training programs in various disciplines
had included ethnogeriatrics in their curricula, two small assessments were under-
taken in 1988; one looked at inclusion in textbooks, and the other in courses. SGEC
Core Faculty members reviewed 41 geriatric textbooks in their own disciplines, 17
of which had some reference to ethnic issues [2]. See Table 2.1.
A modest effort was also undertaken in 1988 by SGEC to assess the curricula in
ethnogeriatrics being taught in colleges and universities in the U.S. Listings of
courses in the National Directory of Educational Programs in Gerontology pub-
lished by the Association of Gerontology in Higher Education (AGHE) in 1987 [3]
were reviewed for content in “ethnic” or “minority” or “cross-cultural” issues. Of
the 404 colleges and universities listed, 41 had at least one reference to courses with
ethnogerontological content, 16 of which were associated with health care training
programs. A request for information was sent to the 16 programs, all of which were
on the East or West Coast, and responses were received from 8. In the process 4
other programs with similar courses were identified. Only one course combined the
three components of health, aging, and ethnicity; it was taught in a vocational nurs-
ing program in a community college in California. Another nursing program
reported that a cultural emphasis was included throughout their curriculum, some of
which applied to geriatric care. The most common pattern was a course offered in
ethnicity and aging in an anthropology or ethnic studies program that was open to
students in different fields, including health care disciplines [1].
Federal initiatives were a major impetus for the development of ethnogeriatric
education in the late 1980s in two significant ways: funding preferences for the mul-
tidisciplinary Geriatric Education Centers (GECs), and an important federally funded
conference in 1988 and its resulting book. Beginning in 1987, the Bureau of Health
2 Historical and Conceptual Foundations of Ethnogeriatrics 21