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Medical Ethics and the Elderly
Medical Ethics
and the Elderly
THIRD EDITION
Edited by
GURCHARAN S RAI
Consultant Physician, Whittington Hospital, London
Honorary Senior Lecturer, Royal Free and
University College Medical School, London
Forewords by
JEREMY PLAYFER AND MARSHALL B KAPP
Cartoons by
IVA BLACKMAN
First published 2009 by Radcliffe Publishing
Gurcharan S Rai has asserted his right under the Copyright, Designs and Patents Act 1998 to be
be identified as the author of this work.
This book contains information obtained from authentic and highly regarded sources. While all
reasonable efforts have been made to publish reliable data and information, neither the author[s]
nor the publisher can accept any legal responsibility or liability for any errors or omissions that
may be made. The publishers wish to make clear that any views or opinions expressed in this book
by individual editors, authors or contributors are personal to them and do not necessarily reflect
the views/opinions of the publishers. The information or guidance contained in this book is
intended for use by medical, scientific or health-care professionals and is provided strictly as a
supplement to the medical or other professional’s own judgement, their knowledge of the
patient’s medical history, relevant manufacturer’s instructions and the appropriate best practice
guidelines. Because of the rapid advances in medical science, any information or advice on dosages,
procedures or diagnoses should be independently verified. The reader is strongly urged to consult
the relevant national drug formulary and the drug companies’ and device or material
manufacturers’ printed instructions, and their websites, before administering or utilizing any of
the drugs, devices or materials mentioned in this book. This book does not indicate whether a
particular treatment is appropriate or suitable for a particular individual. Ultimately it is the
sole responsibility of the medical professional to make his or her own professional judgements, so
as to advise and treat patients appropriately. The authors and publishers have also attempted
to trace the copyright holders of all material reproduced in this publication and apologize to
copyright holders if permission to publish in this form has not been obtained. If any copyright
material has not been acknowledged please write and let us know so we may rectify in any future
reprint.
Except as permitted under U.S. Copyright Law, no part of this book may be reprinted,
reproduced, transmitted, or utilized in any form by any electronic, mechanical, or other means,
now known or hereafter invented, including photocopying, microfilming, and recording, or in
any information storage or retrieval system, without written permission from the publishers.
Trademark Notice: Product or corporate names may be trademarks or registered trademarks, and are
used only for identification and explanation without intent to infringe.
A catalogue record for this book is available from the British Library.
2 Confidentiality 9
Catherine Harvey and Gurcharan S Rai
3 Informed consent 19
Sally Briggs and Martin J Vernon
6 Cardiopulmonary resuscitation 63
Kevin Stewart and Gurcharan S Rai
Since the publication of the second edition, the Mental Capacity Act 2005
received Royal Assent in 2005 and was implemented in two stages in 2007.
This Act provides a comprehensive framework for decision making on behalf
of adults who lack capacity to make decisions on their own behalf. In addition,
there have been several other significant publications including:
➤ an update on consent from the General Medical Council in 2008
➤ a guide from the National Council for Palliative Care on advance decisions
to refuse treatment
➤ a British Medical Association publication on end-of-life decisions in 2007
➤ guidance from the National Institute for Health and Clinical Excellence
and the Social Care Institute for Excellence on supporting people with
dementia and their carers in health and social care in 2006
➤ an update on decisions relating to cardiopulmonary resuscitation from the
British Medical Association in 2007
➤ new guidance on confidentiality from the General Medical Council in
2004
➤ National Health Service Code of Practice on Confidentiality in 2005.
The updated chapters have included the provisions of the Mental Capacity Act
and the above publications. In addition, we have included a new chapter on
communication with older people. However, the main aim of the book remains
the same – it is intended to be a practical guide for junior medical staff, includ-
ing specialist registrars. Other professionals who are involved with doctors in
making difficult decisions will also find this text useful, as will medical students
who now have to learn about medical ethics and their application in day-to-day
management of patients, as part of the undergraduate curriculum.
Gurcharan S Rai
May 2009
vii
Preface to the second edition
Since the publication of the first edition of this book in 1999 we have seen the
introduction of the Human Rights Act 1998, which incorporates the European
Convention of Human Rights into UK law, the production of new guidelines
on cardiopulmonary resuscitation by the British Medical Association in 2002,
the new draft bill on mental incapacity, the new guidelines on consent for treat-
ment and the publication of the National Service Framework for Older People,
with a commitment to abolish ageism in clinical practice. The updated chapters
have included these changes in law, the new guidelines and the new standards
set out in the National Service Framework for Older People. In addition, two
important new chapters on confidentiality and on ethical issues and driving
have been added.
However, the main aim of the book remains the same – it is intended to be
a practical guide for junior medical staff, including specialist registrars. Other
professionals who are involved with doctors in making difficult decisions will
also find this text useful, as will medical students who now have to learn about
medical ethics and their application in day-to-day management of patients, as
part of the undergraduate curriculum.
Gurcharan S Rai
March 2004
viii
Foreword
Ten years in print and a new third edition of Medical Ethics and the Elderly
is a cause for celebration. The book takes its place in the canon of Geriatric
Medicine, earned because of its relevance and clear presentation of the com-
plex moral issues. The third edition is reinvigorated by the addition of new
younger authors who have upheld the tradition of concise incisive contributions
informed by active engagement with clinical problems. The book retains its
shape, style and length, resisting the temptation to expand the content beyond
recognition. There is only one additional chapter ‘Communication, barriers to
it and information sharing’ which is well written and thought provoking. Dr
Gurcharan Rai has shown great skill in editing, incorporating the many changes
in legislation that have occurred since the second edition while retaining the
practicality and instructiveness of the text.
Medical ethics continues to grow in importance as a core subject in medical
education. Those of us dealing with the old and vulnerable need to have skills
in ethical reasoning and an up-to-date knowledge of the relevant legislation.
This book more than achieves its aims of providing not only a practical guide
but also a readable account of the principles and practice of ethics as they apply
to the specialty of medicine for the elderly. It can be used both for reference and
as a textbook from which the basic skills of ethical reasoning can be acquired.
A must read book for anyone training in the specialty and an essential core text
for every geriatrician’s office.
The ethical challenges the medical profession face are becoming more
demanding. The developments of high-tech interventions pose both benefits
and risks to patients. The public are thankfully better informed and able to exert
more influence on issues which were previously reserved to professionals. For
example, there is a growing clamour for physician-assisted suicide in terminally
ill patients which divides professional opinion. Doctors need to be able to react
to the challenges in an informed professional manner that can only be achieved
by them having the ethical literacy which is exemplified by the contents of this
excellent book.
ix
x FOREWORD
Doctors like certainty and medicine is easy when one can make decisions
by simply following guidelines or protocols. Geriatrics is however probably
the most complex branch of medicine. Most of our decisions fall in the grey
area between black and white. In trying to make the best choices for patients,
ethical considerations always play a part. Dr Gurchuran Rai exemplifies a care-
ful and thoughtful approach to medicine and his achievement in editing three
editions of this influential book, including his own original contributions, is
to be greatly admired.
I unreservedly recommend this book. The new edition meets the require-
ments of today’s practice and this and future editions will provide a core text
for doctors and students for many years to come.
Since publication of the second edition of this book in 2004, the international
phenomenon of rapid population aging has continued unabated. Similarly,
the medical, ethical, legal, social and economic challenges accompanying this
demographic development have grown, and continue to grow, increasingly
numerous and complex. For example, in the United Kingdom over the past
half decade, a panoply of legislative developments (including receipt of Royal
Assent to The Mental Capacity Act in 2005) and organisational guidelines and
codes pertaining to the ethical delivery of medical care to older individuals have
emerged and are reflected in many parts of this new third edition.
Similarly, there has been a great amount of relevant legal and economic activ-
ity in recent years in the United States in response to the graying of its citizenry.
Of course, important differences persist between the UK and the United States
in terms of legal, social and economic climate, and those differences certainly
may affect the ethics of providing – and paying for – healthcare for older persons
in each country.
Nonetheless, there remain important commonalities in the basic values and
tensions confronting medical caregivers for the aged in both nations. Generic
ethical concerns that UK and American healthcare providers regularly con-
front (such as the need to delicately balance moral reverence for individual
self-determination, on one hand, and society’s simultaneous responsibility to
maximise the older person’s good and minimise harm, on the other) may be
characterised by unique nuances in the geriatric arena. The special challenges
involved in caring for the aged may result from particular factors inherent in this
patient population (for example, a higher incidence and prevalence of cognitive
and emotional impairment), the types of institutional and community settings
within which geriatric services are provided, and the focus of geriatric care on
the objectives of maximising the patient’s ability to function well in daily life
and achieve an optimal quality of life, rather than on simply extending the
length of life.
In both the UK and the US, ethical decisions must be made and actions taken
xi
xii FOREWORD
(or purposefully not taken) within distinct legal boundaries. Despite the legal
superstructure in each jurisdiction, however, the ethical aspects of medical care
remain for the most part self-enforcing. Thus, the various chapters in this book
acknowledge that geriatric practice ‘on the ground’ (that is, in real life situations)
is determined by healthcare provider virtues and patient wishes as much, if not
more, than by academic ethics or legal edicts emanating from the legislature,
government agency, or the judiciary.
This comprehensive and timely third edition should assist geriatric profes-
sionals to manage, in an ethically tolerable and perhaps even laudatory manner,
circumstances entailing inconsistent and sometimes seemingly incompatible
individual and institutional values. The chapter contributors do not pretend
that there are objectively ‘correct’ answers to the dilemmas posed by an aging
patient population, but they do make available to the reader – through the
skillful employment of numerous hypothetical problems, among other effect-
ive methods of presentation – a very useful grounding upon which to build
more-than-adequate applied ethical analyses of key concerns.
Differences in legal, social and economic climates notwithstanding, there is
much that the UK and US aging services communities can teach to, and learn
from, each other. Even more than its previous version, this thoroughly updated
edition of Medical Ethics and the Elderly will not only assist physicians, medical
students, and other healthcare providers in the UK regarding the ethical ques-
tions with which they regularly must deal, but will also facilitate cross-national
pollination of ethical ideas and skills among healthcare practitioners on both
sides of the Atlantic.
xiii
List of contributors
Jonathan Birns
Consultant in Stroke Medicine, Geriatrics and General Medicine
Guy’s & St Thomas’ NHS Foundation Trust
Iva Blackman
Consultant Physician and Geriatrician
Ann Bowling
Professor of Health Services Research
University College London
Sally Briggs
Specialist Registrar in Geriatric and General Internal Medicine
North Western Deanery
Jim Eccles
Consultant Physician in Geriatric Medicine
St James’ University Hospital, Leeds
Philippa Gee
Highly Specialist Speech and Language Therapist
Royal Berkshire NHS Foundation Trust, Reading
Catherine Harvey
Consultant in Care of Elderly and Acute Medicine
University College London Hospital
xiv
LIST OF CONTRIBUTORS xv
Steven Luttrell
Consultant Physician in Older People’s Services
St Pancras Hospital
Medical Director
Camden Primary Care Trust
David Oliver
Professor of Medicine for Older People
City University, London
Desmond O’Neill
Associate Professor
Department of Gerontology, Trinity Centre for Health Sciences
Adelaide and Meath Hospital, Dublin
Kamilla K Porter
Sessional General Practitioner
Southend-on-Sea
Gurdeep S Rai
Solicitor
David Robinson
Associate Professor
Department of Gerontology, Trinity Centre for Health Sciences
Adelaide and Meath Hospital, Dublin
Gwen M Sayers
Consultant Physician London
Kevin Stewart
Consultant Geriatrician
Royal Hampshire County Hospital, Winchester
Martin J Vernon
Consultant Physician in Elderly Medicine
Wythenshawe Hospital, Manchester
Acknowledgement
Most of the chapters in this book contain information on the Mental Capacity
Act 2005. It is acknowledged that information on it, particularly in Chapter 5
comes from the Mental Capacity Act of Code of Practice, Issued by the Lord
Chancellor on 23 April 2007 in accordance with sections 42 and 43 of the
Mental Capacity Act 2005 and published by Department for Constitutional
Affairs, London TSO (The Stationery Office).
xvi
12 MEDICAL ETHICS AND THE ELDERLY
and will be hurt that they did not know about it sooner. Most importantly, dialogue
should be kept open with Mrs J. Her views may change over time and she may
value your support in discussions with her family at a later date.
Every attempt should be made to obtain consent. In the exceptional cases where
it is not possible, the patient should be told of the decision to disclose infor-
mation at the earliest opportunity. Only relevant information must be shared.
Breaching confidentiality, even when justifiable, remains an infringement of the
patient’s rights, and doctors should be prepared to defend these decisions. It
may be advisable to discuss the matter with a colleague or a professional body
before arriving at such a decision.
§ 7.—Polychromy.
In those figures in which drapery covered all but the head, the
latter was, of course, more important than ever. The artist therefore
set himself to work to increase its effect as much as he could. He
painted the eyeball white, the pupil and iris, the eyebrows, the hair
and the beard, black; sometimes the edges of the eyelids were
defined with the same colour. The band about the head of the king or
vizier is often coloured red, as well as the rosettes which in other
figures sometimes decorate the royal tiara. The same tint is used
upon fringes, baldricks, sandals, earrings, parasols and fly-flappers,
sceptres, the harness of horses and the ornamental studs or bosses
with which it was covered, and the points of weapons.[280] In some
instances blue is substituted for red in these details. Place speaks of
a fragment lost in the Tigris on which the colours were more brilliant
than usual; upon it the king held a fan of peacock’s feathers coloured
with the brightest mineral blue.[281]
When figures held a flower in their hands it was blue, and at
Khorsabad a bird on the wing was covered with the same tint.[282] In
some bas-reliefs red and blue alternate in the sandals of the figures
and harness of the horses.[283] We find a red bow with a blue quiver.
[284] The flames of towns taken and set on fire by the Assyrians were
Fig. 131.—Concave-faced
cylinder; from Soldi.