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M E A N I N G -​C E N T E R E D
P S Y C H OT H E R A P Y I N
THE CANCER SETTING
M E A N I N G -​C E N T E R E D
P S Y C H OT H E R A P Y I N
THE CANCER SETTING

Finding Meaning and Hope in


the Face of Suffering

EDITED BY

W I L L I A M B R E I T B A R T, M D
Chairman, Department of Psychiatry and Behavioral
Sciences
The Jimmie C. Holland Chair in Psychiatric Oncology
Chief, Psychiatry Service
Memorial Sloan-​Kettering Cancer Center
Professor of Clinical Psychiatry
Weill Medical College of Cornell University
New York, New York

1
1
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Library of Congress Cataloging-​in-​Publication Data


Names: Breitbart, William, 1951– editor.
Title: Meaning-centered psychotherapy in the cancer setting : finding meaning and hope in the face of suffering /
edited by William Breitbart.
Description: Oxford ; New York : Oxford University Press, [2017] | Includes bibliographical references and index.
Identifiers: LCCN 2016045419 (print) | LCCN 2016046124 (ebook) | ISBN 9780199837229 (alk. paper) |
ISBN 9780199837236 (ebook) | ISBN 9780190462789 (ebook) | ISBN 9780199390748 ( online)
Subjects: | MESH: Neoplasms—psychology | Psychotherapy—methods | Quality of Life | Hope |
Stress, Psychological—therapy | Culturally Competent Care
Classification: LCC RC271.M4 (print) | LCC RC271.M4 (ebook) | NLM QZ 200 | DDC 616.99/40651—dc23
LC record available at https://lccn.loc.gov/2016045419

This material is not intended to be, and should not be considered, a substitute for medical or other professional advice.
Treatment for the conditions described in this material is highly dependent on the individual circumstances. And, while
this material is designed to offer accurate information with respect to the subject matter covered and to be current as of
the time it was written, research and knowledge about medical and health issues is constantly evolving and dose schedules
for medications are being revised continually, with new side effects recognized and accounted for regularly. Readers must
therefore always check the product information and clinical procedures with the most up-to-date published product
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The publisher and the authors make no representations or warranties to readers, express or implied, as to the accuracy
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consequence of the use and/or application of any of the contents of this material.

9 8 7 6 5 4 3 2 1
Printed by Sheridan Books, Inc., United States of America
For my parents, Rose and Moses Breitbart, who gave me life and the courage to
live.

For my wife, Rachel Breitbart, and our son, Samuel Benjamin Breitbart, who
gave me love and the courage to love.

In memory of my nephew, Ross Evan Breitbart, who had the courage to live
and the courage to love, and gave me the courage to face what lies beyond.

In memory of Lillian Epstein, who gave life to my beloved wife Rachel and gave
me the gift of understanding the beauty of generosity.

In memory of my niece, Renata Horowitz, who taught me that life is meant to


be lived fully every moment of every day.

Sweet Ross, Lillian, Renata, you are all remembered.


CONTENTS

Foreword ix 7. Meaning-​Centered Grief Therapy 88


Acknowledgments xi Wendy G. Lichtenthal, Stephanie
Napolitano, Kailey E. Roberts,
Contributors xiii
Corinne Sweeney, and
Introduction xvii Elizabeth Slivjak
8. Adapting Meaning-​Centered
1. The Existential Framework of Psychotherapy for Adolescents and
Meaning-​Centered Psychotherapy 1 Young Adults with Cancer: Issues of
Meaning and Identity 100
William Breitbart
Julia A. Kearney and Jennifer S. Ford
2. Meaning-​Centered Group
Psychotherapy for Advanced Cancer 9. Adapting Meaning-​Centered
Patients 15 Psychotherapy in the Palliative
Care Setting: Meaning-​Centered
William Breitbart, Allison J. Psychotherapy—​Palliative Care 112
Applebaum, and Melissa Masterson
Melissa Masterson, Barry Rosenfeld,
3. Individual Meaning-​Centered Hayley Pessin, and Natalie Fenn
Psychotherapy for Advanced Cancer
Patients 41 10. Cultural and Linguistic Adaptation of
Meaning-​Centered Psychotherapy for
William Breitbart, Wendy G. Chinese Cancer Patients 122
Lichtenthal, Allison J. Applebaum,
and Melissa Masterson Jennifer Leng, Florence Lui, Angela
Chen, Xiaoxiao Huang, William
4. Meaning-​Centered Group Breitbart, and Francesca Gany
Psychotherapy for Breast Cancer
Survivors 54 11. Cultural and Linguistic Adaptation of
Meaning-​Centered Psychotherapy for
Wendy G. Lichtenthal, Spanish-​Speaking Latino Cancer Patients 134
Kailey E. Roberts,
Greta Jankauskaite, Rosario Costas-​Muñiz,
Caraline Craig, Dawn Wiatrek, Olga Garduño-Ortega,
Katherine Sharpe, and Carlos Javier González,
William Breitbart Xiomara Rocha-​Cadman,
William Breitbart, and Francesca Gany
5. Meaning-​Centered Group
Psychotherapy for Cancer Survivors 67 12. Adaptation of Meaning-​Centered
Group Psychotherapy in the Israeli
Nadia van der Spek and Irma Context: The Process of Importing an
Verdonck-de Leeuw Intervention and Preliminary Results 145
6. Meaning-​Centered Psychotherapy for Gil Goldzweig, Ilanit Hasson-​
Cancer Caregivers 75 Ohayon, Gali Elinger, Anat Laronne,
Allison J. Applebaum Reut Wertheim, and Noam Pizem
viii Contents

13. Replication Study of Meaning-​ Appendix 1: Transcripts of a Full Course


Centered Group Psychotherapy of an Eight-​Session Meaning-​Centered
in Spain: Cultural and Linguistic Group Psychotherapy Intervention with
Challenges 157 an Exemplar Group Conducted as Part
Francisco Gil, Clara Fraguell, of a Randomized Clinical Trial 183
and Joaquin T. Limonero Appendix 2: Transcripts of Two Full
Courses of a Seven-​Session Individual
14. Enhancing Meaning at Work and Meaning-​Centered Psychotherapy
Preventing Burnout: The Meaning-​ Intervention with Two Exemplar
Centered Intervention for Palliative Patients Conducted as Part of a
Care Clinicians 168 Randomized Clinical Trial 239
Lise Fillion, Mélanie Vachon, and Index 377
Pierre Gagnon
F O R E WO R D

MEANING THROUGH specifically to patients with cancer, but over time


T I M E A N D G E N E R AT I O N S the group has found the approach valuable with
We have struggled in our fields of psycho-​oncol- caregivers, with grieving people, and with any
ogy and palliative care to find a therapeutic group for whom life is precarious and existential
approach that helps patients with cancer address issues are of concern.
their existential concerns of an uncertain future. I am said to be the “mother of psycho-​
I recall clearly several years ago when Bill said, “I oncology,” and it is with great pride that I look
have been reading Man’s Search for Meaning by on the many contributions that have carried the
Viktor Frankl and I think his ideas would be very field forward. I also am pleased to be “mother”
helpful in talking with patients with advanced of our Department of Psychiatry and Behavioral
cancer.” Frankl was an academic psychiatrist in Sciences at Memorial Sloan Kettering Cancer
Vienna until World War II, when he was forced Center. The department has spawned some
from his work, home, and family and lived as an remarkable psycho-​ oncologists over the years
inmate for 3 years in Auschwitz, Dachau, and since 1977. Bill and colleagues stand out because
other concentration camps. His book recounts they have given us a tool with which to approach
his rich insights into how he and his colleagues the weighty conversations we have with patients
coped with unbelievable brutality there. He held around these issues. Bill represents the second
tenaciously to his belief that the one thing they generation of psycho-​oncologists from Memorial,
could not take away was the meaning that he gave similar to his being second generation to his par-
to his own life. When he was released, he wrote ents who experienced the Holocaust. I am sure
about his observations from the camps and also that this work has special meaning for him from
described a new psychotherapy, called logother- his personal existential perspective as well as pro-
apy, which incorporated his existential view—​that fessional. I am honored to be part of the “family”
people’s basic need is for meaning in their life no and to write this foreword for such an important
matter how short or how long. Bill has devoted the book for our field.
past 10 years to using Frankl’s concepts to develop Jimmie Holland, MD
a model applicable for cancer patients, called Wayne E. Chapman Chair in Psychiatric
meaning-​centered psychotherapy. At last, there is Oncology
a validated therapeutic approach based on helping Attending Psychiatrist
patients find meaning in their lives. Department of Psychiatry and Behavioral
It has been a pleasure to watch the develop- Sciences
ment and dissemination of meaning-​ centered Memorial Sloan Kettering Cancer Center
psychotherapy. Bill has engaged others in the New York, New York
work to extend the concepts and apply them first, April, 2016
AC K N OW L E D G M E N T S

I am indebted to my family for its love and support, for Complementary and Alternative Medicine, the
and I remember those precious to me, both family American Cancer Society, the Fetzer Institute, and
and patients, who have died during the period of the Kohlberg Foundation, which provided fund-
time we conducted the work on meaning-​centered ing for MCP clinical trials research at Memorial
psychotherapy (MCP) reflected in this text. Sloan Kettering Cancer Center.
I am indebted to all of my colleagues at Finally, my gratitude is extended to the many
Memorial Sloan Kettering who played central hundreds of patients who participated in the
roles in the development and conduct of the clinical trials of MCP and their devoted families
four randomized controlled trials of both MCP and caregivers. Although many of the patients
formats. Special thanks to Mindy Greenstein, who participated in the clinical trials of MCP at
Shannon Poppito, Hayley Pessin, Barry Rosenfeld, Memorial Sloan Kettering Cancer Center are no
Wendy Lichtenthal, Allison Applebaum, and the longer with us, their legacies are alive and affect
many research collaborators, research assistants, the course and meaning of the lives they touched
interventionists, pre-​and postdoctoral fellows, in profound ways. I carry their wisdom in my
and research managers and coordinators. heart—​a heart now more fully open to the love
I am immensely grateful to all of my colleagues and suffering in the world and the search for
and collaborators and friends who contributed out- meaning and peace.
standing chapters describing not only individual William Breitbart, MD
and group MCP for advanced cancer patients but Chairman, Department of Psychiatry and
also the growing number of MCP adaptations for Behavioral Sciences
various cancer populations and for novel pur- The Jimmie C. Holland Chair in Psychiatric
poses. I am especially grateful to my international Oncology
colleagues for contributing their work in MCP to Chief, Psychiatry Service
this text. A special note of thanks to my editors at Memorial Sloan Kettering Cancer Center
Oxford University Press, Andrea Knobloch and New York, New York
Rebecca Suzan. Professor of Clinical Psychiatry
My thanks to the National Institutes of Health, Weill Medical College of Cornell University
the National Cancer Institute, the National Center New York, New York
C O N T R I B U TO R S

Allison J. Applebaum, PhD Gali Elinger, MA


Assistant Attending Psychologist Department of Psychology
Department of Psychiatry and Behavioral Sciences Bar-​Ilan University
Memorial Sloan Kettering Cancer Center Ramat Gan, Israel
New York, New York Department of Psycho-​Oncology
Institute of Oncology
William Breitbart, MD Assuta Medical Center
Chairman Tel Aviv, Israel
Department of Psychiatry and Behavioral
Sciences Natalie Fenn, BA
The Jimmie C. Holland Chair in Psychiatric Department of Psychiatry and Behavioral
Oncology Sciences
Chief Memorial Sloan Kettering Cancer Center
Psychiatry Service New York, New York
Memorial Sloan Kettering Cancer Center
New York, New York Lise Fillion, PhD, RN
Professor of Clinical Psychiatry Professor of Nursing
Weill Medical College of Cornell University Laval University
New York, New York CHU de Québec
Quebec City, Quebec, Canada
Angela Chen
Immigrant Health and Cancer Disparities Service Jennifer S. Ford, PhD
Department of Psychiatry and Behavioral Sciences Associate Attending
Memorial Sloan Kettering Cancer Center Department of Psychiatry and Behavioral Sciences
New York, New York Department of Pediatrics
Memorial Sloan Kettering Cancer Center
Rosario Costas-​Muñiz, PhD New York, New York
Assistant Attending Psychologist
Department of Psychiatry and Behavioral Clara Fraguell, MA
Sciences Psychologist
Immigrant Health and Cancer Disparities Mutuam-​EAPS Barcelona Stress and Health
Service Research Group
Memorial Sloan Kettering Cancer Center Faculty of Psychology
New York, New York Universitat Autònoma de Barcelona
Barcelona, Spain
Caraline Craig, MPH
Department of Psychiatry and Behavioral Pierre Gagnon, MD, FRCPC
Sciences Professor of Pharmacy
Memorial Sloan Kettering Cancer Center Laval University
New York, New York CHU de Québec and Maison Michel-​Sarrazin
Quebec City, Quebec, Canada
xiv Contributors

Francesca Gany, MD, MS Julia A. Kearney, MD


Chief, Immigrant Health and Cancer Disparities Assistant Professor
Service Department of Psychiatry and Behavioral
Memorial Sloan Kettering Cancer Center Sciences
New York, New York Department of Pediatrics
Department of Healthcare Policy and Research Memorial Sloan Kettering Cancer Center
Weill Cornell Medical College New York, New York
New York, New York
Anat Laronne, MA
Olga Garduño-​Ortega, BA Department of Psycho-​Oncology
Immigrant Health and Cancer Disparities Service Institute of Oncology
Department of Psychiatry and Behavioral Sciences Assuta Medical Center
Memorial Sloan Kettering Cancer Center Tel Aviv, Israel
New York, New York
Jennifer Leng, MD, MPH
Francisco Gil, PhD Immigrant Health and Cancer Disparities
Director, Psycho-​Oncology Department Service
Institut Català d’Oncologia Department of Psychiatry and Behavioral
Clinical Psychologist Sciences
Associate Professor of Psychology Memorial Sloan Kettering Cancer Center
Stress and Health Research Group New York, New York
Faculty of Psychology Department of Healthcare Policy and Research
Universitat Autònoma de Barcelona Weill Cornell Medical College
Barcelona, Spain New York, New York

Gil Goldzweig, PhD Wendy G. Lichtenthal, PhD


Associate Professor Assistant Attending Psychologist
Dean, School of Behavioral Sciences Department of Psychiatry and Behavioral
The Academic College of Tel-​Aviv Sciences
Yaffo, Israel Memorial Sloan Kettering Cancer Center
New York, New York
Carlos Javier González, MA
Linguistics/​Cultural Responsiveness Program Joaquín T. Limonero, PhD
Manager Health Psychologist
Immigrant Health and Cancer Disparities Service Lecturer (Acreditated Professor of Psychology),
Department of Psychiatry and Behavioral Stress and Health Research Group
Sciences Faculty of Psychology
Memorial Sloan Kettering Cancer Center Universidad Autónoma de Barcelona
New York, New York Barcelona, Spain

Ilanit Hasson-​Ohayon, PhD Florence Lui


Associate Professor Department of Clinical Psychology
Bar-​Ilan University The City College of New York
Ramat Gan, Israel New York, New York
Immigrant Health and Cancer Disparities
Xiaoxiao Huang, MA Service
Immigrant Health and Cancer Disparities Service Memorial Sloan Kettering Cancer Center
Department of Psychiatry and Behavioral Sciences New York, New York
Memorial Sloan Kettering Cancer Center
New York, New York Melissa Masterson, MA
Fordham University
Greta Jankauskaite, BA Department of Psychology
Department of Psychiatry and Behavioral Bronx, New York
Sciences
Memorial Sloan Kettering Cancer Center
New York, New York
Contributors xv

Stephanie Napolitano, MA Elizabeth Slivjak, BA


Department of Psychiatry and Behavioral Department of Psychiatry and Behavioral Sciences
Sciences Memorial Sloan Kettering Cancer Center
Memorial Sloan Kettering Cancer Center New York, New York
New York, New York
Corinne Sweeney, PhD
Hayley Pessin, PhD Department of Psychiatry and Behavioral Sciences
Department of Psychiatry and Behavioral Memorial Sloan Kettering Cancer Center
Sciences New York, New York
Memorial Sloan Kettering Cancer Center
New York, New York Mélanie Vachon, PhD
Department of Psychology
Noam Pizem, MA Université du Québec à Montréal
Division of Oncology Montréal, Quebec, Canada
Chaim Sheba Medical Center
Tel Hashomer Nadia van der Spek, PhD
Ramat Gan, Israel Department of Clinical Psychology
IDC Center for Psycho-Oncology OLVG
Kailey E. Roberts, MA Hospital
Department of Psychiatry and Behavioral Vrije Universiteit Amsterdam
Sciences Amsterdam, the Netherlands
Memorial Sloan Kettering Cancer Center
New York, New York Irma Verdonck-de Leeuw, PhD
Professor of Clinical Psychology
Xiomara Rocha-​Cadman, MD Vrije Universiteit Amsterdam
Assistant Attending Psychiatrist Department of Otolaryngology—​Head and Neck
Department of Psychiatry and Behavioral Sciences Surgery
Memorial Sloan Kettering Cancer Center VU University Medical Center
New York, New York Amsterdam, the Netherlands

Barry Rosenfeld, PhD Reut Wertheim, MA


Professor of Psychology Department of Psychology
Fordham University Bar-​Ilan University
New York, New York Ramat Gan, Israel

Katherine Sharpe, MTS Dawn Wiatrek, PhD


Senior Vice President, Patient and Caregiver Strategic Director, Cancer Treatment Access
Support American Cancer Society
American Cancer Society Atlanta, Georgia
Atlanta, Georgia
INTRODUCTION

FINDING MEANING IN team the importance of sustaining meaning in


T H E FA C E O F S U F F E R I N G : order to still have the courage and will to live life,
A PERSONAL JOURNEY even in the face of death. These patients taught me
OF MEANING that experiencing meaningful moments could be
This textbook, Meaning-​Centered Psychotherapy accompanied by the emotion of joy, which made
in the Cancer Setting, which I am proud to edit it possible to better tolerate suffering and uncer-
and have published by Oxford University Press, is tainty. The randomized controlled trials of MCP
a culmination of more than a decade and a half of in fact demonstrate that by enhancing meaning,
work conducted by the Psychotherapy Laboratory patients with advanced cancer have significantly
within the Department of Psychiatry and improved quality of life and spiritual well-​being
Behavioral Sciences at Memorial Sloan Kettering and significantly less anxiety, depression, hope-
Cancer Center. I am the founding Director of the lessness, desire for hastened death, and symptom
Psychotherapy Laboratory, and our group of labo- burden distress—​all mediated through enhanced
ratory faculty members, research personnel, and meaning. We have in fact demonstrated the power
collaborators has produced a body of research on of meaning in the amelioration of suffering and
issues related to what I refer to as “meta-​diagnostic despair.
constructs”—​existential issues leading to despair, A famous Talmudic question asks, “What is
suffering, hopelessness, and loss of spiritual well-​ truer than the truth?” The answer: “The story.”
being and meaning that often leads to desire for What follows is the “story” of meaning-​centered
hastened death, poor quality of life, and poor psy- psychotherapy for cancer patients. Like many
chosocial outcomes.1–​19 This body of work has led stories, it involves multiple characters as well as
to a focus on the importance of “meaning” and the twists and turns in the narrative; and like all sto-
psychosocial and quality of life benefits of sustain- ries, it has its origins in an important legacy that
ing and enhancing meaning in advanced cancer has been given, and represents what these charac-
patients. ters have created with this given legacy.
The recent publication of several random- Perhaps the most important source of legacy
ized controlled trials of meaning-​centered group given in the story of meaning-​centered psycho-
psychotherapy (MCGP) and individual meaning-​ therapy is the inspiration of the work of Viktor
centered psychotherapy (IMCP),19–​21 as well as the Frankl.24,25 Meaning-​ centered psychotherapy
publication of two treatment manuals—​Meaning-​ was inspired, to a great degree, by the works of
Centered Group Psychotherapy for Patients with Frankl and his elucidation of the importance of
Advanced Cancer22 and Individual Meaning-​ meaning in human behavior and existence. It is
Centered Psychotherapy for Patients with Advanced the conviction that there is always the possibility
Cancer23—​ represent the culmination of many for meaning, the experience of meaning, the cre-
years of effort to develop an effective meaning-​ ation or search for meaning, even in the setting
centered psychotherapy intervention for cancer of advanced cancer and the limitations of time in
patients—​a research effort that was born out of the face of death that is the essence of meaning-​
clinical experience with thousands of advanced centered psychotherapy for advanced cancer
cancer patients who taught me and my research patients.
xviii Introduction

Frankl’s seminal work, Man’s Search for approach to care for advanced cancer patients
Meaning,24 reminds us that finding meaning in I came to call “meaning-​centered psychotherapy.”
our existence is a defining characteristic of human
beings. Meaning cannot be given by one human T H E L E G AC Y O F T H E
being to another; rather, each of us must go H O L O CAU S T
through the process of searching for the meaning My parents, Rose and Moses Breitbart, were
in our lives. Before describing meaning-​centered Holocaust survivors. After disrupting their lives
psychotherapy in terms of its scientific rationale, at ages 14 and 17, respectively, my parents sur-
structure, and practice, I want to start with the vived the Holocaust by hiding, fighting as par-
“truth”; the story; my story, which is one of “a tisans in the forests of Poland, and finally in a
personal journey in search of meaning: from the displaced persons camp outside of Munich called
camp to the cancer center.” Fahrenvald. They married there in 1949, and
I am a child of Holocaust survivors. This is they spent their wedding night in a borrowed
an identity that has defined me because of the “wedding bed.” Arriving on the Lower East Side
profound legacy and source of meaning it has of Manhattan, New York City, they had nothing
imparted to me. It is what Life has given me, and of their own but the will to live and the courage
I have made the choice to respond to this legacy of to love; and with that will to live and courage to
death, and loss, and perceived meaninglessness by love they created a life of meaning in a mean-
using it as a source for compassion to ease those ingless world. They had the fight. They had the
in despair with advanced cancer and help them insight.
reclaim a life of meaning in the face of loss, suffer- I was the first born of two sons. The legacy of
ing, and limitations. the Holocaust remained alive and lived with us in
I am a physician. I am trained and certified in our two-​bedroom apartment on Grand Street. The
both internal medicine and general psychiatry. Holocaust did not have its own room; it lived in
I am also trained and certified in the subspecialty every room, and on the walls, and in the drawers,
of psychiatry called psychosomatic medicine, in pictures, in documents in files, and in prayer
specifically the field of psycho-​oncology. Psycho-​ books and tefilin saved from the flames of war.
oncology is a new field, developed primarily “Why am I here?” My mother asked this ques-
during the past 35 years, which focuses on the tion of herself every morning of my life and urged
psychosocial care of cancer patients and their me to ask the same question of myself every day.
families. “Why am I here? And so many others are not!”
I am a physician, and my mission is to care This in fact is the more complete question my
for cancer patients and their families. I began my mother asked. Both my parents lost so much—​
training in psycho-​oncology in 1984 as a clini- parents, siblings, cousins, aunts, uncles, school-
cal fellow in psycho-​oncology at Memorial Sloan mates, friends.
Kettering Cancer Center in New York City, work- I grew up with a legacy of loss and suffering,
ing closely with my mentor, Dr. Jimmie Holland. but in a home filled with love, compassion, and
I made Dr. Holland’s mission, to create the field of the need to find meaning and purpose and signifi-
psycho-​oncology in order to provide comprehen- cance. I accepted the responsibility and the bur-
sive psychosocial care to cancer patients through- den of living not only my life but also the lives of
out the world, my mission as well. I have worked those who did not survive.
toward this goal, for almost 32 years, as a clini- I commit a great deal of time and energy to
cian, researcher, educator, administrator, writer, this mission, sometimes working 80 hours a week
lecturer, and advocate. and spending many evenings and weekends in the
I am a psychiatrist/​psycho-​oncologist who was hospital or traveling to lecture or participate in
searching to find a way to ameliorate the despair of scientific meetings. It did not come as a surprise
patients with advanced cancer who saw no mean- to me when my wife of 30years recently expressed
ing, value, or purpose in living in the face of the lim- that she and my 25-​ year-​old son occasionally
itations of approaching death. In my search, I found “feel lonely” and miss my presence at home. I am
that the belief in the possibility of experiencing or blessed to have an understanding and loving
creating meaning, even in the last months or days family.
of life, sustained hope and diminished despair and I am a psychiatrist whose mission is to care
suffering. This is the story of my personal journey for cancer patients and their families, too often at
in search of meaning, and the development of an the expense of caring for my own family. So it is
Introduction xix

no surprise that when I received a telephone call treatment, different course trajectory, differ-
several years ago, on a Saturday morning of a ent time expectations in terms of survival.
weekend when I was not scheduled for hospital From potential cure or long-​term survival, to
coverage or supervision of trainees, I immediately preparing for death. The fear of death over-
went into the hospital to help a patient in distress. whelmed her. The profound sadness of a life
I did not know that I was about to have a “trans- cut short, of children not fully raised, of the
formative” experience. loss of all those she loved and the life she was
so fully living. She was in great despair and
THE CASE OF suffering terribly. She needed someone to give
T R A N S F O R M AT I O N her guidance and comfort.
The call was not from a doctor or nurse at the
hospital but, rather, from one of my neighbors THE JOURNEY LEADING
on the Upper East Side of Manhattan. Her best TO THIS PATIENT’S BEDSIDE
friend was a patient in the hospital at Memorial I was called to see her by her dearest friend,
Sloan Kettering Cancer Center and was in who perceived the great need to help amelio-
extreme emotional distress. She did not call rate the fear of death in her friend but felt she
to ask me to see her friend in the hospital but, had no idea how to help; what words to use
rather, to ask me how she could best comfort her to comfort, what path of guidance to provide.
friend and how to help her in her current state “How do I help my friend overcome her fear
of despair, grappling with a profound sense of of death? How do I help her maintain a sense
loss of hope and meaning. After eliciting details of meaning and hope in the face of death?”
of her friend’s dilemma, I quickly volunteered to were the questions posed to me. These were
go in to see her friend myself—​not only as an act familiar questions—​ones I had contemplated
of compassion but also out of a sense of respon- and grappled with through my clinical and
sibility in my role as Chief of the Psychiatry research career for more than two decades.
Service at the hospital. As I made my way to the hospital, in anticipa-
This is a brief summary of the details of the tion of my encounter with this patient, I had
case prior to my meeting the patient: a relatively clear sense of what I felt would be
helpful in our encounter. My sense of clarity,
She is the 47-​year-​old mother of 2 children, about what constituted an effective approach
ages 8 and 11. She has spent the last 20 years to patients with advanced cancer who were in
of her life working to become the successful despair and turmoil in the face of death, came
head of a legal firm in New York City. She is a from thousands of clinical experiences with
woman of accomplishment, achievement, and dying patients; a series of clinical research
will. She is a woman who is beloved and loves studies my group had conducted during the
well. When she learned of a diagnosis of can- past decade on despair and desire for death
cer, she quickly used her powerful connections near the end of life; an awakening to the
to receive her cancer treatment at Memorial importance of existential psychotherapy and
Sloan Kettering Cancer Center in New York, our group’s experience in conducting inter-
from the “best” oncologists and surgeons in vention trials of a novel psychotherapy I had
the country. Initially, the most remarkable developed that we called meaning-​ c entered
part of her cancer experience was that she was psychotherapy; and my rediscovery of exis-
misdiagnosed. She was thought to have ovar- tential philosophy (particularly the works of
ian cancer, and, despite the shock and fear, Frankl), the importance of lessons provided by
had adapted to the news and held on to the my personal Holocaust legacy, and the ancient
hope of a possibly favorable outcome. But the and sacred texts of my heritage. As I made my
diagnosis was wrong, and the prognosis was journey to this patient’s bedside, I recalled the
suddenly dramatically changed, for the worse. journey I had made during the past decades
Intraoperatively it became clear that this was that led me to the sense that I was the right
not ovarian cancer, but in fact a rare presen- person for this patient to see today, and that
tation of metastatic colon cancer (Meig’s syn- my ideas about a psychotherapeutic approach
drome) that had spread to the ovaries and the to the problem of living life with meaning, in
lower pelvis. Now her prognosis was dire. The the face of death, could be potentially helpful
shift in expectations was dramatic; different to her and patients like her.
xx Introduction

T H E I M P O R TA N C E of antidepressant treatment for depression in this


O F M E A N I N G I N E N D -​O F -​ population and to focus new efforts on develop-
LIFE CARE ing nonpharmacologic (psychotherapy) interven-
My research group has conducted a series of stud- tions that can address such issues as hopelessness,
ies examining the importance of meaning and loss of meaning, and spiritual well-​being in patients
spiritual well-​ being in end-​ of-​life care.4-​10 We with advanced cancer at the end of life. In fact, two
demonstrated a central role for spiritual well-​ studies of pharmacologic treatment of depression in
being, and, in particular, meaning, as a buffering advanced cancer and AIDS patients demonstrated
agent, protecting against depression, hopeless- that if depression is effectively treated, desire for
ness, and desire for hastened death among ter- hastened death remits; however, a significant pro-
minally ill cancer patients. We also found that portion of patients with desire for hastened death
spiritual well-​being was significantly associated were not clinically depressed but had loss of mean-
with end-​of-​life despair (as defined by hopeless- ing and hopelessness independent of depression.11–​13
ness, desire for hastened death, and suicidal ide- Thus, clearly a nonpharmacologic approach to
ation), even after controlling for the influence of enhance meaning and hope was needed. This effort
depression. Moreover, when spiritual well-​being led to an exploration and analysis of the work of
was divided into two components, one measur- Frankl and his concepts of logotherapy or meaning-​
ing a sense of meaning and another measuring based psychotherapy.24,25 Although Frankl’s logo-
spirituality linked to religious faith, the inability therapy was not designed for the treatment of
to maintain a sense of meaning was much more cancer patients or those with life-​threatening illness,
strongly associated with end-​of-​life despair than his concepts of meaning and spirituality clearly, in
was the faith component of spiritual well-​being our view, had applications in psychotherapeutic
(i.e., the ability to sustain a sense of meaning work with advanced cancer patients, many of whom
was associated with lower levels of hopelessness, seek guidance and help in dealing with issues of sus-
desire for hastened death, and suicidal ideation). taining meaning, hope, and understanding cancer
These findings are significant in the face of what and impending death in the context of their lives.
we have come to learn about the consequences of Frankl’s main contributions to human psychol-
depression and hopelessness in cancer patients. ogy have been to raise awareness of the spiritual
Depression and hopelessness are associated with component of human experience and the central
dramatically higher rates of suicide, suicidal ide- importance of meaning (or the will to meaning)
ation, and desire for hastened death and interest as a driving force or instinct in human psychology.
in physician-​ assisted suicide.1–​3 Our findings3 Frankl’s basic concepts include the following:
demonstrate that hopelessness is an independent
and synergistic predictor of desire for death that 1. Meaning of life: Life has meaning and
is as powerful an influence on desire for death as never ceases to have meaning even up
(and independent of) depression. Such data (dem- to the last moment of life; meaning may
onstrating that loss of meaning and hopelessness, change in this context, but it never ceases
independent of depression, lead to despair at the to exist.
end of life) strongly suggested to us that nonphar- 2. Will to meaning: The desire to find
macologic, psychotherapeutic interventions must meaning in human existence is a primary
be developed to help patients with loss of meaning instinct and basic motivation for human
and hopelessness at the end of life. We set out to behavior.
develop such a set of interventions using Frankl’s 3. Freedom of will: We have the freedom to
concepts of the importance of meaning in human find meaning in existence and to choose
existence. the attitude toward suffering.
4. The three main sources of meaning in life
M E A N I N G -​C E N T E R E D are derived from creativity (work, deeds,
PSYCHOTHERAPY and dedication to causes), experience (art,
F O R A DVA N C E D C A N C E R nature, humor, love, relationships, and
PAT I E N T S roles), and attitude—​the attitude one takes
The importance of spiritual well-​being and the role toward suffering and existential problems.
of “meaning” in particular in moderating depres- 5. Meaning exists in a historical context;
sion, hopelessness, and desire for death in termi- thus, legacy (past, present, and future) is a
nally ill cancer and AIDS patients demonstrated by critical element in sustaining or enhancing
our research group led us to look beyond the role meaning.
Introduction xxi

The novel intervention we developed and to be exposed to the humanities in an effort to


call “meaning-​centered psychotherapy” is based learn about the care of “humans.” Reading and
on the concepts described previously and the discussing The Death of Ivan Illyich is now quite
principles of Frankl’s logotherapy. It is designed a popular means of teaching our younger col-
to help patients with advanced cancer sustain or leagues about the process of dying and the poten-
enhance a sense of meaning, peace, and purpose tial for redemption and growth even in the last
in their lives even as they approach the end of moments before death. The Book of Job, how-
life. We initially conducted a pilot randomized ever, has eluded many of us in palliative care as
trial of an 8-​ week (1½-​ hour weekly sessions) a source of lessons that can be applied to clini-
meaning-​centered group psychotherapy (MCGP) cal intervention in palliative medicine. I suspect
intervention, based on the concepts of meaning as there are multiple reasons: (1) The Book of Job
elucidated by Frankl, that utilized a highly devel- is seen as a purely religious text with few secular
oped treatment manual incorporating a mixture applications; (2) the lessons of the Book of Job are
of didactics, discussion, and experiential exer- perhaps arcane, unclear, and subject to extensive
cises that focus around particular themes related and divergent interpretations; and (3) although
to meaning and advanced cancer. Our findings19 not the final reason, I suspect that too many of us
suggested that MCGP is a highly effective inter- have not really bothered to actually read the Book
vention, increasing a sense of meaning, spiritual of Job and only know what we hear from others of
well-​being, and hope while decreasing end-​of-​life the lessons that may lie within. The truth is that
despair. Subsequent randomized controlled trials during the past 23 years, I have been working in
of MCGP and a more flexible individual format of the care of the dying, referred to Job hundreds if
MCP (IMCP) in fact demonstrate that by enhanc- not thousands of times in the context of discuss-
ing meaning, patients with advanced cancer have ing suffering, and yet I had never really taken
significantly improved quality of life and spiritual the time to read the text myself—​completely and
well-​being and significantly less anxiety, depres- with an open mind.
sion, hopelessness, desire for hastened death, and Reading the Book of Job turns out to not be
symptom burden distress—​all mediated through an easy task. There are many versions, of vary-
enhanced meaning.19–​21 ing lengths and with differing story lines. There
is also no paucity of controversy as to which is the
B E YO N D M E A N I N G : accurate version. In addition, there is no dearth of
I N T E G R AT I N G C O N C E P T S commentary on the interpretations of the lessons
OF WILL, MEANING, of this epic poem. Great thinkers ranging from
AND CARE Spinoza to Carl Jung have responded to Job’s story
I had gained a great deal of therapeutic insights with great thought, insight, and differing con-
into the care of the cancer patient facing death clusions as to what it reveals about the relation-
through my work in developing and conduct- ship between man and God. Most of the debates
ing clinical trials with a manualized, structured, have focused on the questions of Theodicy (Can
meaning-​ centered psychotherapy intervention. God and evil coexist?) and whether God is a
However, a persistent sense remained with me “personal” God, involved in the affairs of human
that there was much more to be learned and fur- beings, punishing those who sin, rewarding those
ther insights needed in order to be able to more who are deserving, and responding to prayer, or
effectively work with patients facing death. There whether God is a “natural” God who is unknow-
was much more for me to learn and more trans- able, mysterious—​one whose actions cannot be
formation required in me and my approach to understood by human beings. These are primarily
patients. I began to turn my attention to the works religious questions about the nature of God, yet
of the existential philosophers, and to several they are questions that arise in the palliative care
sacred texts, to take me further on this journey. setting quite frequently. “Why did this happen to
Those of us who work in palliative medicine me?” “What did I do to deserve this?” These are
ignore the lessons of the great books and sacred questions we are asked frequently as palliative
texts of our civilizations at our own peril. Wisdom care clinicians. Although these are often religious
lies in works as disparate as Leo Tolstoy’s The questions that relate to an individual’s relationship
Death of Ivan Illyich, the Book of Job, or Martin to God, they are also in essence universal existen-
Heidegger’s Being and Time. It is becoming a tial concerns that are being expressed. Patients
more common practice in palliative care and often turn to us a clinicians for comfort, solace,
psycho-​oncology training programs for trainees and even answers.
xxii Introduction

I recently set out to read the Book of Job. We first encounter the terms “upright” and
I chose to read the Book of Job translated and “whole” in the prologue of the poem, in which
with an introduction by Stephen Mitchell,26 who God says to the Accuser (Satan), “Did you notice
is a Brooklyn-​born poet and translator of sacred my servant Job? There is no one on earth like
texts whose work I was familiar with and had him: an upright and whole man, who fears God
enjoyed reading in the past. I have particularly and avoids evil.” These terms are likely used here
enjoyed his translations of the poetry of Rainer to describe Job as a man who shuns evil, a man of
Maria Rilke and his translation of the Psalms. integrity and goodness, and a pious man who fears
Mitchell does not merely provide a modern acces- God. As the story of Job progresses, the concepts
sible translation but also gives historical context of being “upright” and “whole” return repeatedly,
and references that enrich the experience of the with an even richer, more powerful meaning and
reading. This was definitely the case in my reading wisdom attached to them.
of his translation of the Book of Job. For example, Our next encounter with the concepts of
I learned that we do not really know who is the “upright” and “whole” occurs quickly after Job is
author of the Book of Job. There is little evidence told that all of his material wealth has been lost
as to who the author is, when and where he or she and that all of his sons and daughters have been
wrote it, or for what kind of audience. One of the killed. Job stands up. He tears his robe. He shaves
greatest paradoxes of this greatest Jewish work of his head. He lays down with his face in the dust,
art is that the hero is a gentile, as might have been pouring earth on his head. He then says, “Naked
the author. Some authorities estimate that this I came from my mother’s womb, and naked
dramatic epic poem, which treats the problem of I will return there. The Lord gave, and the Lord
the suffering of the innocent, and of retribution, has taken; may the name of the Lord be blessed.”
was written between the seventh and fifth cen- Now some may focus on Job’s acceptance of God’s
tury bc. Despite the uncertainty as to the Jewish will; I, however, was struck by Job’s initial acts of
origins of the author or hero of this poem, the (1) falling to the ground from an “upright,” stand-
theme of Job is the great Jewish theme of the post-​ ing position and literally humbling himself in the
Holocaust age—​the theme of the innocent victim. dust from which he was formed (the humus of
As a child of Holocaust survivors, I was of course humanity); and (2) tearing his clothes, symboli-
drawn to some of these elements. cally representing the disintegration or rupture of
Indeed, there are a myriad of existential and the “whole” that was his identity prior to losing all
spiritual themes that one can become immersed that gave his life meaning. Now Job’s actions might
in when reading the Book of Job. I focused on two also strike some as being similar to the Jewish act
themes really, because of their relevance to my work of “Teshuvah” or repentance for a sin committed
as a clinician who cares for those who suffer during against God. It is interesting to note that the term
the dying process. First, I was struck by the rele- Teshuvah also means “to return,” implying that
vance of Job’s experience of suffering to the experi- Job’s actions are intended to lead God to restore
ence of so many of the patients we care for. When him to a state of being “upright” and “whole”
Job is afflicted with disease of his flesh and bones, through repentance. In fact, at the end of the
the description of his experience reminded me of Book of Job, God does restore all of Job’s wealth,
the experience of a patient with leukemia whom provides an even greater number of children and
I had cared for. After undergoing a bone marrow grandchildren, and fully restores Job’s identity
transplant, this patient was suffering from severe and his relationship to the transcendent. Job is
graft-​versus-​host disease. Job felt his bone mar- restored to a state of being “upright” and “whole.”
row swell in pain, his skin was cracked and oozing, I became interested in how these concepts
and he cried out in despair, even begging for death of being “upright” and “whole” might be of
to end his suffering. “This is exactly what I expe- benefit in my clinical work with dying patients.
rienced, I was praying to die so that my suffering I have conceptualized being “upright” as a man-
could end,” my patient recounted as we discussed ifestation of will. When one is “upright,” one is
Job’s experience. I was impressed by the accuracy capable of exerting his or her will in the world.
of the description of suffering. Second, I was struck Exerting one’s will, or free will, in the case of a
by the repeated themes of being “upright” and terminally ill patient may take the form of hav-
“whole.” I recognized these themes as being useful ing the “courage to continue to live in the face of
clinical and psychotherapeutic concepts in the care death”; to have the courage to still have wishes,
of those who are suffering in the face of death. wants, and desires in life, despite the finiteness
Introduction xxiii

of life; and to reassess priorities in the face of the “intentionality of being” (consciousness is
a limited prognosis and decide to focus on “about” something), the temporality of our exis-
those priorities (e.g., spending time with fam- tence, and such important existential concepts
ily, deciding to not take palliative chemother- as “responsibility” and “angst.” Heidegger also
apy and focusing on pain and symptom control, describes what he refers to as a “care structure”
creating a generativity document, or continuing of “being” (Dasein), and “being in the world” is
to work as long as possible). When patients are essentially “care.” Admittedly, Heidegger’s con-
forced to lay in bed with fatigue or uncontrolled cepts of “care” and a “care structure” are com-
pain (not upright, but literally on their backs) plex, but I began to understand this concept of
and robbed of their ability to enact their will, “care” as twofold. On the one hand, “care” refers
they clearly suffer. The concept of remaining to our being engaged in the world as a willful
“upright” for as long as possible in the face of agent, with people, causes, and ideas that we
the dying process is, in my opinion, a useful deeply care about. On the other hand, “care”
construct to utilize in terms of treatment plan- refers to “self-​care” or caring for one’s self. Self-​
ning and goals of care. care is the realization that one must preserve
I have begun to conceptualize the concept of one’s self (through taking care of one’s self) in
being “whole” as the ability of a patient facing a order to be able to care for others and the world.
life-​threatening illness “to remain connected to all In our meaning-​centered group psychotherapy,
that gives meaning, value, and purpose” to one’s we conduct an experiential exercise in one of
life, even during the dying process—​to remain our session on “responsibility.” Members of
connected to loved ones and to resist the “isola- the group are asked to respond to the stimulus
tion” that comes from couples “protecting” each question, “Who and what are you responsible to
other from their fears and concerns but, rather, to or for?” In co-​facilitating these sessions, I have
“relate” to each other by sharing these fears and been consistently surprised by the responses of
concerns and to be closer and more connected at the terminal cancer patients in these groups.
a time when such connectedness is so very vital. Almost universally, cancer patients respond,
Being “whole” represents an effort to “preserve “First, I am responsible for myself. If I do not
one’s identity” for as long as possible, despite the care for myself, I cannot be responsible for
real or threatened losses and ravages of progres- anyone or anything else.” I am surprised by
sive disease. this response because my list of answers never
Recently, in working with an older man who included “taking care of myself.” It was not self-
was struggling with advanced myeloma, we dis- ishness, I soon learned, but rather an important
cussed these concepts of facing the dying pro- lesson of life that those of us in good health
cess “upright” and whole” in our psychotherapy. often ignore but that life-​threatening illnesses,
These concepts were quite attractive to him, and such as cancer, remind us in profound ways.
I sensed they resonated strongly with his wishes As I traveled to the hospital to meet the
for how he could find a “way to live while he patient in despair, I thought of these concepts of
was dying.” “upright” and “whole” as guides for being “upright” and “whole”—​but how to incor-
how to live in the face of death seemed to be porate this third notion of “care” (including the
helpful concepts, but I felt something was miss- importance of caring for one’s self)? The words
ing. If I used the metaphor of “upright” and came to me as an epiphany. “Careful.” “Full of
“whole” as two legs of a stool, the stool seemed care.” “Carefully.” I smiled to myself at the pros-
a bit unstable, unfinished. One more basic prin- pect of being able to give the following answer
ciple, one more leg of the stool (a three-​legged to a very profound question: “Doctor, how
stool), seemed necessary to make it stable, com- can I manage to live in the face of death?” The
plete, and truly useful. That is when I discov- answer: “Very carefully.” As the taxi pulled up to
ered “care.” the main entrance of the hospital, I felt that per-
haps I had finally constructed that stable, three-​
BEING CAREFUL legged stool: “Upright, whole, and careful.” Did
Martin Heidegger was an influential, and some- I have an answer to the question, “How do I live
what controversial, German existential philoso- in the face of death?” I was about to find out if
pher whose best known work is Being and Time.27 this approach (Box I) would open a path out of
Heidegger elaborated our further understand- despair for the patient who waited for me on the
ing of the nature (or experience) of “being,” 10th floor of the hospital.
xxiv Introduction

BOX I    HOW TO LIVE (BE) IN THE FACE OF DEATH

• Upright: Realization that one is still alive and standing, not lying beneath the ground; con-
tinuing to have wants and wishes, to exert one’s will, to have courage
• Whole: To remain connected to all that gives meaning, value, and purpose in life; to relate,
not isolate
• Careful: To remember to care for one’s self, one’s loved ones, one’s legacy; rippling effect

AT T H E PAT I E N T ’ S B E D S I D E the misdiagnosis, anger at the injustice of a


The following is a brief summary of my meeting shortened life, deep profound sadness at the
with the patient: anticipated loss of her life as she knew it, leav-
ing her children, her husband; all unbearably
As I entered the room, she smiled, despite her sad. She initially spoke of her fear of death and
despair, perhaps because she anticipated that the overwhelming anxiety it produced. Soon
I could help ease the turmoil she was experi- it became clear through my questioning that
encing so acutely. “You look like a psychiatrist fear was not her only emotional response to
should look!” she said aloud. Her husband death. There was the anger, sadness, guilt. We
was off on an errand, and we decided to find a spoke of her religious beliefs and dissected
private, quiet room to talk, rather than speak- her fear of death. In fact she was comforted by
ing at her bedside in her room, which she her religious beliefs, and had her own ideas of
shared with another patient. “I’m in turmoil!” death being in fact a serene and not unpleas-
The distress was apparent on her face as she ant experience. It was, in fact, not death that
began to weep. She described the events of challenged her so, but rather the impossibility
the past 3 weeks. First a diagnosis of ovarian of how she could live through the period of
cancer. Then a process of information gather- time from now until death that really over-
ing, finding the best doctors, starting to adapt whelmed and frightened her. “Doctor, how
to her altered life trajectory and the tasks that can I live in the face of death?” She asked the
lied ahead of her, hopeful that her progno- question I had been waiting for; the question
sis would be favorable and that life could be I had been struggling and working for so long
resumed at some point down the line. Then to find an answer to. “Carefully, very care-
the news after surgery, just 2 days ago, that fully,” I said. I then explained to her my expe-
this was metastatic colon cancer, with a new riences with patients during the past 24 years
set of information to learn and process, and and how I had begun to evolve what I thought
a new prognosis to make sense of. I quickly might be a useful answer to this question. We
normalized for her the sense of turmoil she talked about the Book of Job, which she had
was experiencing. With any diagnosis of can- read as a young person. And the lessons I had
cer, one must go through a process of “assimi- learned from Job’s experience. I outlined an
lation” and “accommodation.” Hearing the approach for how to live (be) in the face of
news, digesting it, believing it is really you death by being “upright, whole, and careful.”
with this cancer, and then a process of accom- I explained each concept. “Upright” meant
modating to this new reality through cognitive the following. She was still alive, standing
coping, emotional coping, active coping, and above ground, not dead yet. She needed to
meaning-​focused coping. I explained that she have the courage to continue to live and exert
had just gone through one process of assimila- her will; to continue to have wishes, desires,
tion and accommodation and was now forced hopes, wants; to live fully for as long as pos-
to suddenly start the assimilation and accom- sible. “Whole” meant she needed to remain
modation process anew. She had successfully connected to all that gave her life meaning. To
done this before and I predicted she would stay connected to her loved ones, her children,
again, and in fact pointed out where she had her husband, even perhaps to work. “Careful”
already started the processes. Then came a meant she needed to take care of herself. The
torrent of emotions: fear of death, anger at road ahead was going to be difficult, with
Introduction xxv

chemotherapy and other treatments. She were two basic constructs that were universally
needed to be kind to herself, to rest, and to accepted as the basis of the counseling inter-
give herself time. She also needed to have the vention with a dying patient: support and non-​
courage to still care for and love the people abandonment. Supportive counseling is, at its
she most treasured, resisting the impulse to essence, allying with a patient’s defenses and coping
withdraw because of how much it would hurt strategies and supporting or reinforcing them. So
to lose them when the time came. We talked the patient who is dying, and is using denial in the
at length about these three concepts and how face of the proximity of death, would be supported
they related to her life. Her mask of despair by the therapist in this way of coping. We all find
began to crumble, and the person beneath ourselves allying with hopes, even unrealistic ones,
began to re-​ emerge. Everything about her expressed by patients and families in the dying
seemed calmer. “This has been helpful, thank process. However, experienced clinicians also cre-
you,” she said. The plans for her care involved ate possibilities for patients to discuss death and
her returning to her home in another city in dying by gentle questioning. Non-​abandonment or
several days. I referred her to a respected col- presence is a second basic principle of counseling
league close to her home. We embraced and the terminally ill. The therapist makes a commit-
said goodbye. ment to escort or accompany the patient through
the course of treatment and the dying process.
Two days later, I receive a handwritten card There is power in the presence of the therapist in
from her best friend who had first contacted me accompanying the patient on this too often lonely
for help and advice. It was a truly moving note: path. The goals of psychotherapy with advanced
cancer patients often consist of applying the prac-
I don’t know exactly what you said to my dear tices of “compassion” (Box II). The question many
friend in the hospital, but whatever it was, it of us are have been asking in recent years is “Can
helped her in a very profound way. She is no we accomplish something more ambitious in psy-
longer in despair and feels she has a path and chotherapy with the terminally ill?”
direction to follow now. I wish that I could The “more ambitious” goal of psychotherapy
have been there to hear what you discussed. with the terminally ill is to help patients come to
It sounded as if I would have benefited from a sense of acceptance of a life lived and, thus, ulti-
the discussion as well. All I know at this point mately an acceptance of death (i.e., being able to
is that I should pick up the Book of Job and face death with a sense of peace and equanimity).
read it again. Many suggest such a goal of care is not achievable
by all, and perhaps inappropriate for many. I sug-
T H E G OA L S O F gest that tasks of life completion are achievable
PSYCHOTHERAPY and essential at this phase of life. Acknowledging
I N A DVA N C E D C A N C E R or facing death (i.e., the finiteness of life) is the
There is an evolution taking place regarding the impetus for transformation. Facing death forces
nature and scope of the clinical goals of psycho- us to turn around and face life—​the life one
therapeutic or counseling interventions in the has lived. When one examines the life one has
palliative care setting. Most psychotherapists and lived and struggles to accept that lived life, one
counselors would agree that until recently, there is faced with a number of challenges and tasks

BOX II    GOALS OF PSYCHOTHERAPY IN PALLIATIVE CARE: THE


PRACTICES OF COMPASSION

• Hospitality: Creating the setting for community and communication—​recognizing we share


the human condition and we are connected
• Presence: To give the other our full attention: “attending” physician; to be fully present for
the other transcending our own concerns
• Listening: To hear and to respond in a way that makes the patient know he or she has been
“understood”; empathy
xxvi Introduction

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the beyond, and to transcend life as we know it.
5. McClain C, Rosenfeld B, Breitbart W. The
The goal is to preserve the idea that there is still
influence of spirituality on end-​ of-​
life despair
life to be lived, still time to become, so that one
among terminally ill cancer patients. Lancet.
can die with a sense of peace, equanimity, and
2003;361:1603–​1607.
acceptance of the life one lived. The paradox of 6. Breitbart W. Spirituality and meaning in
the end-​of-​life dynamic is through acceptance of supportive care: Spirituality-​and meaning-​
the life one has lived comes acceptance of death centered group psychotherapy interventions
(Figure I). in advanced cancer. Support Care Cancer.
2002;10(4):272–​280.
7. Breitbart W, Gibson C, Poppito SR, et al.
BOX III   EXISTENTIALLY Psychotherapeutic interventions at the end of
life: A focus on meaning and spirituality. Can J
INFORMED END-​O F-​L IFE CARE
Psychiatry. 2004;49(6):366–​372.
GOALS: GROWTH AND TASKS 8. McClain-​Jacobson C, Rosenfeld B, Kosinski A,
IN THE DYING PROCESS et al. Belief in an afterlife, spiritual well-​being
and end–​of-​life despair in patients with advanced
• Sense of life completion cancer. Gen Hosp Psychiatry. 2004;26:484–​486.
• Sense of coherent meaning about one’s 9. Breitbart W. Spirituality and meaning in support-
ive care: Spirituality and meaning-​centered group
life
psychotherapy intervention in advanced cancer.
• Leaving legacy
Support Care Cancer. 2002;10:272–​278.
• Facing death with peace and equanimity 10. Breitbart W, Gibson C, Poppito S, et al.
• Acceptance of death Psychotherapeutic interventions at the end of
• Acceptance of a life lived life: A focus on meaning and spirituality. Can J
Psychiatry. 2004;49:366–​372.
11. Breitbart W, Rosenfeld B, Gibson C, et al. Impact
of treatment for depression on desire for has-
CONCLUSION tened death in patients with advanced AIDS.
I am a physician whose mission is to care for can- Psychosomatics. 2010;51(2):98–​105.
cer patients and their families, too often at the 12. Rosenfeld B, Breitbart W, Gibson C, et al. Desire
expense of caring for my own family. In the process for hastened death among patients with advanced
of searching for a means of integrating concepts of AIDS. Psychosomatics. 2006;47:6:504–​512.
will, meaning, and care into an approach to ame- 13. Rosenfeld B, Pessin H, Marziliano A, et al.
liorate the despair experienced by patients facing Does desire for hastened death change in ter-
death, I had a transformative experience that led minally ill cancer patients? Social Sci Med.
me to appreciate the importance of caring for myself 2014;111:35–​40.
and my family, while still “being in the world.” The 14. Rosenfeld B, Gibson C, Kramer M, et al.
lessons of the dying are to inform the living of the Hopelessness and terminal illness: The construct
value of life. Perhaps we die so that we can appre- of hopelessness in patients with advanced AIDS.
ciate the importance of living. Palliat Support Care. 2004;2:43–​53.
—​William Breitbart
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16. Abbey JG, Rosenfeld B, Pessin H, et al. Meaning-​ centered group psychotherapy: An
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Title: Etuvartiotaistelu
Kolminäytöksinen näytelmä

Author: Konrad Lehtimäki

Release date: December 16, 2023 [eBook #72435]

Language: Finnish

Original publication: Tampere: Tampereen Työväen Sanomalehti Oy,


1920

Credits: Tapio Riikonen

*** START OF THE PROJECT GUTENBERG EBOOK


ETUVARTIOTAISTELU ***
ETUVARTIOTAISTELU

Kolminäytöksinen näytelmä

Kirj.

KONRAD LEHTIMÄKI

Tampereella, Tampereen Työväen Sanomalehti Oy, 1920.

HENKILÖT:

Vilho Korpi, tehtaantyömies, 45 v. Liisa, hänen vaimonsa, 40 v. Anni,


heidän tyttärensä, 18 v. Emil, heidän poikansa, 20 v. Kaarlo
Suonpää, konetyömies, 22 v. Holm, mestari, 40 v. Halonen, työmies.
Kellunen, työmies. Eräs vaimo. Ensimmäinen työmies. Kaksi poliisia.
Korven lapset. Työmiehiä ja työläisnaisia.

Tapahtuu eräällä tehtaalla Suomessa työväenliikkeen alkuaikoina.

Ensimmäinen näytös.
Ensimmäinen kuvaelma.

Työmies Vilho Korven kamari. Huone on yksinkertaisesti, mutta


siististi kalustettu: kiillotettu piironki, kokoontyönnetty kaksiosainen
vuode ja nurkassa kirjahylly, jossa on raamattu ja punakantisia
työväen kirjoja, lentokirjasia y.m.; sivuseinällä näkyy kotitekoinen
kukallisella kankaalla päällystetty sohva ja muutamia tuoleja. Uunin
edessä joulukuusi, jota Korven tytär Anni paraillaan koristelee. Hän
näyttää vielä hyvin nuorelta ja lapselliselta hentoine vartaloineen, ja
hänen kasvonsa ovat huomattavan kauniit sielukkaine silmineen.

Perällä avautuu kyökkiin johtava ovi ja noin kymmenen vuotias


poika kurkistaa uteliaasti sisään.

ANNI iloisena, teennäisen toruvasti.

Menetkö sieltä vai! Sitten saatte nähdä, kun se on valmis… Ei


ennen.
Kyllä minä teidät opetan!

(Juoksee ovelle, poika poistuu nauraen; Anni lukitsee oven.


Hetken kuluttua kuuluu koputus ja pojan matalaksi muutettu ääni).

ÄÄNI.

Avaa… minä se olen, minä — Kaarlo…

ANNI hiljaa hyräillen jatkaa työtään ja sisäinen onni kuvastuu


hänen kasvoillaan; sitten katsahtaa kelloaan, kuuntelee. Kyökistä
kuuluukin läheneviä askeleita, oven kahvaan tartutaan, koputus.
Anni on heti juossut ovelle ja kuuntelee henkeä pidättäen
riemukkaan jännittyneenä.
MIEHEN ÄÄNI

Aukaise Anni!

(Anni ei vastaa).

MIEHEN ÄÄNI

Onko Anni kamarissa, Antti?

POJAN ÄÄNI

Kyllä hän siellä on, mutta luultavasti nukkuneena.

MIEHEN ÄÄNI nauravasti.

Nukkunut! Ei suinkaan! — (Leikillisesti.) — Anni herää! On aika


lähteä työhön… kello on jo paljo…

ANNI aukaisee, sulkee sen Kaarlon tultua ja sanoo hymyillen.

Vai työhön sinä tahdot minua lähtemään? Siksi et siis tahtonut


tulla ennemmin?

KAARLO

En joutunut ennen.

ANNI leikillisesti.

Sano heti, missä olet viipynyt? Tee tili. Ehkä jonkun tytön luona?

KAARLE
Hiukan sinnepäin.

ANNI

Vai niin.

KAARLO hämillään.

Olin hiukan Lindroosilla — kun näin pikku pojan pilkkomassa puita.


Väänänen on vielä vuoteessa… Missä Korpi on?

ANNI katsoo häntä hetken ihaillen, lähenee hiukan, puristaen


Kaarlon kättä. (Kaarlo suutelee häntä.) Isä — isä on Johanssonilla,
hän on ollut siellä verstaassa useana iltana. Minä luulen, että hän
tekee siellä pojille jotain joululahjoja.

KAARLO

Niinkö? Kas, teillä on kuusikin!

ANNI havahtuen.

Voi sinua, kun viivytät minua… unohdin kokonaan.

(Alkaa kiireesti kiinnittää koristeita.)

KAARLO

No, minä autan — hyvitän siten pahantekoni…

Alkaa auttaa Annia. Hymyilevät äänettöminä ja sitten kuuluu


hetken väliaikojen kuluttua puoliääneen lausuttuja sanoja, joissa
kuvastuu sisäinen onni ja hellyys.
— Kas sinä olet saanut omenoitakin.

— Täytyy vähän lapsille.

— Mistä nämä hevoset ja porsaat ovat? Enhän minä leipurilla


tuollaisia ole nähnyt.

ANNI

Pitäisikö niiden leipurilla näkyä.

KAARLO

Ahaa, sinäkö, osaatko sinä tuollaisiakin, nehän ovat sieviä.


Saanko minä tämän?

ANNI

Saat kyllä, mutta täällä on sinulle toinen… Ajattelin antaa sen


vasta myöhemmin, mutta en sentään kehtaa, saat sen nyt…

(Ottaa piirongin laatikosta kahden yhteenkiinnitetyn sydämen


näköisen piparkakun ja antaa sen punastuen Kaarlolle.)

KAARLO katsoo piparkakkua ja sitten Annia omituisen,


äänettömän liikutuksen vallassa; kuiskaa värähtäen:

Anni… Anni, kaksi sydäntä… Tämän minä säilytän… Ja joskus,


joskus kaukana tulevaisuudessa minä jonakin jouluna otan sen
esiin… Silloin kun…

ANNI liikutettuna.
Koska Kaarlo… mitä tarkoitat, sano.

KAARLO syleilee häntä, sitten pitäen käsistä puhuu matalalla,


värisevällä äänellä.

Voi Anni! Minä en ymmärrä, en osaa sanoa miten onnellinen


olen… En ole koskaan tuntenut tällaista ihmeellistä riemua kuin nyt.

ANNI keskeyttää ihmetellen.

Sinäkin! Tiedätkö Kaarlo… juuri sellaista outoa iloa minäkin


tunnen… Ja minä olen…

(Hän ottaa taskustaan esiin käärön, aukaisee sen ja ojentaa


Kaarlolle rautaisen sormuksen.)

Se on rautainen… sanoit kerran pitäväsi mustasta…

KAARLO seisoo, katsoo Aunia voimakkaan liikutuksen


valtaamana; sitten värisevällä, katkonaisella äänellä.

Mitä tämä on Anni… Katsos, minäkin olen ostanut sinulle. Tuntuu


niin omituiselta, niinkuin jokin tuntematon, sama salainen ääni olisi
kuiskannut samaa kummankin korvaan.

ANNI hiljaa, liikutettuna.

Niin Kaarlo, sellainen voima onkin — rakkaus.

KAARLO

Niin Anni, juuri se voima viime talvenakin kuiskasi meille


molemmille, että yhdistäisimme elämämme, mutta kun isä
loukkaantui, kielsi se ilmoittamasta mitään toisillemme.
ANNI

Oi Kaarlo, kyllä se niin on, minä tunnen sen. Kaikki on ollut niin
omituista.

KAARLO

Tiedätkö, minusta tuntuu kuin näkisin sinut eräässä toisessa


sievässä kamarissa, ympärilläsi riemusta loistavia katseita, vienoa,
heleätä naurua, ilohuutoja. Minä istun sohvalla ja katselen sinua
puhumatta mitään. Ja minun on niin hyvä olla. Silloin minä nousen,
otan tuon piparkakun esiin ja kutsun sinut viereeni. Me emme puhu
mitään, katsomme vain sitä ja toisiamme, me muistamme erään
toisen jouluaaton kauan sitten — näemme saman joulukuusen kuin
nyt. Sinä painat pääsi rinnalleni niinkuin nytkin — sinä itket ja
hymyilet kyyneleet silmissä, — (Kohottaa Annin päätä) — sillä
hymyilethän sinä nyt, Anni?

(Suutelee liikuteltuna Annia.)

ANNI yhtaikaa itkien ja hymyillen, kuiskaa värähtäen.

Oi Kaarlo… kun se vaan toteutuisi. Kun ei vaan tapahtuisi


mitään… jotain ikävää.

KAARLO

Älä pelkää, Anni, eihän enää saata mitään tapahtua. Olemmehan


me jo lapsuudesta asti kokeneet vain vastoinkäymisiä ja
kärsimyksiä, tehneet ankarasti työtä. Voisiko elämä vielä riistää
yhteisen onnemmekin. Mehän tahdomme niin vähän.
ANNI

Niin — kun vain saamme olla yhdessä, tehdä yhdessä työtä ja


rakastaa toisiamme.

KAARLO

Minä en tahdo muuta kuin oman mökin ja sen ympärille vähän


perunamaata ja puutarhan. — (Kuin uneksien.) — Päivisin kävisin
työssä ja iltasin muokkaisin puutarhassamme, kasvattaisin kaaleja,
lanttuja, marjoja ja muuta. Ajattele — miten istumme siellä tyyninä
kesäiltoina, jolloin ilma on täynnä mullan ja ruohon tuoksua, ja
lintujen laulu heläjää yhtenä moniäänisenä kuorona ympärillämme.
Kaipaisitko silloin jotain enempää?

ANNI ihastuneena, kyyneleet silmissä.

Eihän voi olla mitään ihanampaa kuin se! Sentähden pelkäänkin,


että se on liian onnellista, ettemme saa sitä!

KAARLO

Turhaan sinä pelkäät. Mitä sanot, jos menemme naimisiin aivan


heti, ensi kuussa? Minun säästörahoillani saamme kyllä piirongin ja
vuoteet ehkä ruokakaapinkin, mutta miten saamme liinavaatteita ja
muuta?

ANNI

Oi Kaarlo! Minulla on neljän tyynyn ja patjan päälliset, onpa kaksi


lakanaakin. Ja on minulla rahaakin sen verran, että saadaan astioita
ja muuta välttämätöntä.
KAARLO

Anni, silloin emme enää odota!

KORPI tulee reippaasti sisään. Hän on kookasvartaloinen,


voimakas mies; hänen kasvoillaan kuvastuva sisäinen ilo muuttaa ne
Iällä hetkellä nuorekkaiksi, lieventää elämän huolien ja taistelujen
uurtamat ankarat tarmokkuuden piirteet. Hän ottaa poveltaan äsken
veistetyn puuhevosen, sanoen iloisesti.

Jaha, se on hyvä, että kuusi on valmis — lapset ovat jo


maltittomia.

KAARLO

Kas, te olette veistänyt kauniin hevosen! Kuka sen saa?

KORPI ikäänkuin hämillään.

Eihän se mikään… mutta kun tuli laitettua Antille sukset, niin


Eeron täytyy myös saada jotakin…

ANNI

Vai saa Antti sukset! Sepä on hauskaa, ettei hänen enää tarvitse
tynnyrinlaudoilla rähjätä. Hänhän pitää kovin hiihdosta.

KORPI Mene Anni katsomaan onko äidillä jo joulupuuro valmista.

(Anni menee.)

LIISA tulee sisään, kääntyen ovella lasten tupatessa sisään.


Älkää nyt, pysykää nyt siellä vielä hetkisen! — (Korvelle iloisesti.)

Onko sinulla nälkä, vai mitä?

KORPI

En minä nyt itseni tähden, mutta kai lapset jo mielellään tulisivat


joulukuusta katsomaan.

LIISA

Mutta kun lapset hälisevät niistä joululahjoistaan, niin eikö olisi


parasta jakaa ne ensin?

KORPI leikillisesti.

Jaetaan vaan. Anni, alappas sytyttää! — Utelias minäkin olen


näkemään mitä minun entinen morsiameni on täksi jouluksi
keksinyt… Hänellä on toisinaan niin omituisia lahjoja…

LIISA keskeyttää hellästi, moittivasti.

Oletko vaiti siinä, vanha veijari! Sinä et tarvitse mitään.

KORPI

Noin se käy, kun vanhenee. Viime jouluna hän vielä piti


jonkunverran minusta, koska toimitti joululahjaksi — pienen tytön.

(Kaikki naurahtavat. Kaarlo menee myös sytyttämään


joulukuusta.)

LIISA hämillään hymähtäen.


Kyllä sinä olet ihan parantumaton lörpöttelijä — kun et
vanhanakaan tule järkiisi. Ja vielä puhut lahjoista! Mutta mitä sinä
olet keksinyt minulle, kun olen taas koko vuoden kärsinyt tuollaista ja
vielä ruokkinut, pessyt, paikannut vaatteet…

KORPI keskeyttäen.

Päästetään lapset sisään, muuten ei meidän mamman hyvyydestä


tule' loppua koko iltana. — (Huutaa.) — Hei lapset, tänne! Mars!

(Ovi avautuu ja sisään työntäytyy iloisella melulla kaksi poikaa ja


kaksi tyttöä, joista vanhempi, noin 13—14 vuotias kantaa nuorinta
sylissään. Kuuluu iloisia huudahduksia.)

— Voi miten kaunis!

— Omeniakin!

— Kas, nyt tiedän, nuo ovat Annin valmistamia.

LIISA

Katri, anna Liisa minulle ja koettakaa nyt istua rauhallisesti. Antti,


älä koske niihin namusiin, ei niitä vielä saa kukaan.

ANTTI

Minä vain katson. Mutta älä sinä Eero mene niin lähelle kynttilää,
poltat pitkän tukkasi.

EERO

Mitä isällä oli povessa?


KORPI

Povessa? Tule katsomaan. Luultavasti hiiri! — (Poika tulee) — Ei


täällä näytä mitään olevan. Menemmekös äidin viereen istumaan. —
(Siirtää tuolinsa Liisan viereen, ottaa Eeron syliinsä ja asettaa
kätensä Liisan vyötäisille, kuiskaten hiljaa, hymyillen.)

No äiti, eikös nyt ole hauska olla?

LIISA katsahtaa häneen säteilevin silmin, ääni liikutuksesta


värähtäen.

On tietysti!

KORPI kuin itsekseen.

Mutta kyllä niitä on ollut ikäviäkin jouluja. Ei ollut


ensimmäinenkään hauska, muistatko? — (Hetken vaitiolon jälkeen,
Kaarloon käännähtäen.) — Tuo Anni oli vasta viikon vanha, kun
minut ihan jouluaattona erotettiin työstä ja pakotettiin muuttamaan
telttaan huoneesta. Moitin mestaria, kun hän solvasi syyttömästi
erästä vanhaa työmiestä. Me pääsimme erään suutarin mökkiin,
mutta Liisa oli vielä niin heikko, että minun täytyi kantaa loppumatka.
Hän ei sanonut, että tuli sairaammaksi, vaan teeskenteli
nukkuvansa. En minä koskaan unohda sitä aattoiltaa; minä istuin
pimeässä vuoteen vieressä, Anni nukkui korissa ja sitten kuulin
pidätettyjä nyyhkytyksiä. Sillä kerralla minäkin aloin itkeä.

LIISA värisevin äänin.

En minäkään sitä unohda. — (Kumartuu pienokaisen puoleen


peittääkseen liikutustaan.)
KAARLO viittaa Annin viereensä sohvaan, lausuu hiljaa.

Kyllä se on kamalaa, kun tuollaisia kärsimyksiä täytyy kestää.

KORPI samoin kuin ennen.

Vaikka kyllä niitä on kestetty kovempiakin. Mutta tuskallisin joulu


oli meillä eräänä vuonna, kun minä olin ollut kaksi kuukautta
työttömänä ja kaikki huonekalut ja vaatteet oli jo pantattuna — me
olimme silloin Helsingissä. Neljä pientä lasta oli, eikä ollut
jouluaattona enää muuta kun vähän leipää; mutta sitten sinä sait
sellaista mateenlihaa, josta oli liemi keitetty, ja sinä paistoit sitä
rasvassa…

LIISA tukehtuneella äänellä.

Silloin pieni Väinö-raukka kuoli… tapaninpäivä-Aamuna…


Muistatko, miten viisas hän…

(Ääni katkeaa nyyhkytyksiin.)

KORPI tarttuu Liisan käteen, puhuen lohduttavalla, värisevällä


äänellä.

Älä… älä itke Liisa… Voi minua hölmöä, kun alan tuollaisia
vanhoja jutella! Eihän niitä enää toiseksi saa — ja onhan meillä ollut
niin monta onnellista joulua. Eikös totta Liisa? Entäs nyt sitten? —
(Vilkasee Kaarloon ja kun huomaa tämän kumartuneen käsiensä
varaan, suntelee Liisaa, kuiskaten hellästi.) — Emmekö nyt ole
onnellisia, Liisa?

LIISA hymyilee kyyneleet silmissä.


Tiedäthän sinä sen, Vilho?

KORPI reippaasti.

Nyt ei enää muistella surullisia! Onhan päästy vuosi eteenpäin


ja jos terveenä pysytään niin kai se taas menee ensi jouluun. —
(Leikillisesti.) — Näin vähän kerrallaan elämä menee sentään
paremmin.
Ei sitä köyhän auta ottaa suurta kasaa kerrallaan. Eikö niin, Liisa?

(Anni havahtuu ja menee äänettömästi kyökkiin.)

LIISA

Kyllä se menee Vilho. — (Huoahtaa ja hänen kasvoilleen ilmestyy


jotain vierasta hartautta.) — Varsinkin jos me muistamme pitää
Jumalan mukana kaikissa toimissamme. Ilman häntä ovat kaikki
työmme ja vaivamme turhat.

KORPI

Niin, niin… Mutta miten niiden joululahjojen kanssa oikein…

LAPSET

— Niin, joululahjat.

— Tuleeko joulupukki?

— Saa nyt nähdä.

LIISA
Odotetaan nyt hetkinen. Isä näyttää olevan malttamattomampi
kuin lapset…

(Silloin koputetaan ja lapset huudahtavat iloisesti.)

— Siellä on joulupukki.

— Joulupukki tulee.

— Nyt saadaan joululahjoja.

— Sisään!

Ovi avautuu hiukan ja sisään työnnetään pärekori, jossa on joukka


kääröjä. Lapset tuovat sen ilohuudoin äidin eteen. Sitten tulee vielä
uudet sukset.

Kääröjä jaetaan ja availlaan yleisen sekavan puheensorinan


vallitessa; sorinasta eroittaa seuraavia sanoja:

— Tässä on Katrin paketti.

— Ota Eero omasi.

— Katsokaa, sukset!

— Minulla on vanttuut!

— Hevonen —'katsokaa tytöt!

— Kiitoksia isä! Näillä pääsee niin kovin, että…

ANNI
Äidille ja isälle! — (Tuo käärön Liisalle, joka alkaa aukaista sitä
hymyillen.)

KORPI iloisesti, leikillisesti.

Samassa paketissa! Nythän ei voi tietää kumpi on minun ja äiti voi


ottaa minulle kuuluvan.

ANNI

Kyllä sen eroittaa! Ja on niissä nimikin… — (Liisa ottaa kääröstä


valkean villahuivin ja ojentaa Korvelle harmaan villapaidan.)

KORPI iloisesti hämmästyen.

Villapaita — näin lämmin! Kukahan tämän on lahjoittanut?


Olisikohan minun vanha morsiameni sittenkin vielä muistanut…

LIISA hellästi leikillisesti.

Tuskinpa kukaan morsian tuollaista vanhaa äijää muistaa!

KORPI samoin.

Ei sitä tiedä — katsokaa lapset! Eikös isä ole vielä nuori ja pulska
mies? — (Naurun ja puheensorinan seasta eroittaa Liisan äänen).

LIISA

Puheista luulisi nuoreksi pojannulikaksi, mutta kun näkee…

ANNI

Kyllä isä vielä komea sulhanen on…

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